You would have been proud of me (mostly)....:-)

valval

cris just leaving ((())) and lots of tea take care pal val

frogmorton

Hi All

Just popping in on behalf of Cris to let you know she has a doctor's telephone appointment this morning at 11. If they insist on seeing her she will go in, but isn't keen as the doc on duty is new and she is in a lot of pain.

She doesn't know what they may suggest. She has had MRIs on the neck before and had the opinion of two consultants who both have said it was too unstable to operate on.

Of course the increasing bouts of numbness may change things now.

Finger's crossed

Toni xx

elnafinn

I am so sorry to hear about you, Cris - not long now until the phone appointment. I was wondering how recent was the latest MRI? I do hope you get some good help with your problems.

Thinking of you and thank you Toni for the update.

Love
Elna x

frogmorton

Hi All

Just a quick update from Cris. she had the phone consultation and sadly it wasn't that much help:

he said this is what you get with advanced spondy and she is to double her pain meds ( :shock: they are pretty strong ones :shock: ) and if things don't settle in a day or so to contact the pain clinic doc.

She found out from him that she has an 'open' appt with her, which she hadn't realised. This is good news as she has a lot of time for her.

He also suggested she try the collar on 'loose'.

Bless her we had a good chat and l got her laughing in the end

Thank you Elna and everyone for caring. The neck is making typing too painful just at the moment, but she does try to look in if she can and appreciates all of your kind wishes.

Love

Toni xx

barbara12

Aww Toni thanks for the update...bless her...I do hope that collar works till she gets some more help....dont you just wish we had a magic wand...but I will send her lots of good healing vibes...and lots of warming hugs (((((())))

dachshund

Thank you Toni.
thank you for letting us know about Cris. i hope the collar helps her i wish some thing would.
take care ((((((((cris)))))))).
joan xx

valval

thanks for up date send gentle hugs for her val

suzygirl

Toni, thanks for the update.

Cris, so sorry to hear that you are in so much pain and discomfort. I would love to wave it all away for you. I so so hope the pain clinic fit you in soon. I ish the beast wasn't so cruel, but I hope all the kindness and love you are shown here, lessen the blow slightly.


Izzy sends cuddles and a nuzzle. I send warming hugs and a magic job fairy.

barbara12

Hi Cris
Sending you more good healing vibes...I hope you get in that bed tonight..and not the chair.Pleasssse x

Wonkylegs

HI tis wonky PA here

Cris is on the phone dictating

so in Cris's words ......

First of all thanks to Toni for really lifting my spirits this morning.

Toni and I have hatched a plan to try to track down the surgeon who operated on my lumbar (a very tricky op at the time) and get his opinion on the neck. Tis important to get an opinion from someone I trust. Sadly I'll have to pay because they (pain doc and rheumy) won't refer me to an ortho. The pain clinic doc said if it was her neck she wouldn't let anyone touch it.

Elna - the last full MRI was about 4-6 years ago, but the neck is checked regularly by the pain doc using ultrasound. Apparently - as I understand it - the bones are too deteriorated to be able to hold the screws that would be needed in an op.

Sending hugs back to Barbara, Joan, Val & Suzy and we'll leave a sachet for Izzy (and hope that littlelegs doesn't see if first )

Sorry too for keeping letting the forum down & I'm so sorry.

Thanks to you all for the care you show me, it's really appreciated!

love and hugs (and cris is insisting that I thank Wonky :roll: )

Cris ((((()))))

ironic

Thanks Toni glad you managed to have a good natter with Cris.

I do hope you manage a proper sleep tonight Cris and it is good news about the pain clinic.

Thinking of you and sending some calming vibes and a one way train ticket for the two winged ones.

Hugs as always,
Lv, I x

Oh Wonky, nearly missed that one, yes that sounds like a plan to me.

suzygirl

Cris, tis late for me, but Izzy was vey excited. Now I understand she got there before littlelegs, sorry :oops:

Leaving a parcel for littlelegs and a warming cushion for you x

tillytop

Hello Cris

Although I am not posting much at the moment I am looking in sometimes and I do think about you.

I am so sorry that you are in so much pain with your neck.

Having spent ages trying to deer-proof the owl box, I decided we might as well put his cunning to good use instead so have been trying to train him to collect the supplies from the owl box and and take them to wherever you are. So hopefully he is on the way to you now (but hope he doesn't eat the CDM on the way )

Thinking of you lots Cris. Love and ((()))s

Tilly xxx

julie47

Toni and wonky thankyou for letting us know about cris.
You are both exellent pa's

Cris I am so sorry that you are having so much trouble with your neck and really do wish that there was something that could be done for you. (still even being on a waiting list you seem to be ignored :roll: I still have no word myself)

I send you hugs and a cottonwool roll to line your collar.
Take care
Love Juliepf x

CJHunter

Cris, am sending you loads of positive vibes, gentle hugs, and many mugs of tea.

Take care of you and hope eases soon.

Miss you hun.xx

stickywicket

dachshund wrote:

i hope the collar helps her i wish some thing would.

I think Joan has very neatly summed up my feelings, skezier.

I like the 'cunning plan' that you & Toni have hatched up. An expert you have faith in, with a good track record on you, seems like the ideal guy to ask. Go for it. And take some of these with you. ((((( ))))) (For you, not for him. OH well, whatever it takes!)

elnafinn

Elna - the last full MRI was about 4-6 years ago, but the neck is checked regularly by the pain doc using ultrasound. Apparently - as I understand it - the bones are too deteriorated to be able to hold the screws that would be needed in an op.

Dear Cris

I am really sorry to hear that. Yes, a good idea to try to track down your ortho from years ago. I do hope you are able to do this and he is still "in the profession".

Love
Elna x

barbara12

Hi Cris
And may I say its good to see you NOT posting for a while....that is such a good idea of yours to track down your original surgeon...wishing you good luck with it all....sending more buckets of good healing vibes........

suzygirl

Cris, i like your plan, it is a good idea. Shame you have to pay though. Lets hope he is able to help in some way.

I am keeping you in my thoughts x

P.s I am loving the dictation by wonkylegs, it makes you a forum VIP!!!!!

frogmorton

Hi All

Got Cris (yes the VIP) on the phone as l type

She says the following:

I found 'my' Mr Browne - with an 'e' Unfortunately he has actually retired and is only doing consultancy work for insurance companies now :sad: .

Having said that l did have a productive conversation with the private clinic which has helped me understand that l can't 'run from this' I am looking at palliative which is the right way to go and the chat helped me accept that a bit.

HOWEVER l reserve the right to (from time to time) dummy spit and kick my legs in the air (on a good day ) This may include screaming shouting and sky ranting and generally crashing about the place refusing to believe this......you have been warned

ON the GOOD side l woke up with much less pain, (and far less pins and needles the numness now hurts because it's coming back to life),and even managed to wear the collar for an hour. Unfortunately the weight of my head has kicked it again now. This is the FIRST time for days .

The upping of the Oxy has helped no end and l am feeling much better. All in all l woke up much better the first time for about a week .

Wonky and l were talking last night about whether the OT could make me a custom-made collar?? l am still waiting for the appointment, but will ask.

Elna l might still be after one like yours Can l ask has it got a bit that comes down over the shoulders because that would go over the lump and it might be just what l need.

Hugs to all of you - especially; Tilly the Deer on his way back, a sachet for Suzy and littlelegs thanks her for the parcel Sticky Haz is bouncing in your general direction with his suit on :shock: (as Toni l am jealous)

Huge thank you to Wonky and Toni (who is that??) for doing such duties (wages yet to be negotiated) Be warned (Juliepf will verify this) l will nab any of you to do PA duties!

Major thanks to all of you and l am so grateful for keeping me from being too down. I can look in just not type. I have had a 'warning shot' but this time with rest (and some sensibleness - Toni)will be ok.

Love

Toni xx

elnafinn

Aw dear Cris, no, this brace does not go over the shoulders. You can google it if you have the strength - Miami J Collar.It definitely keeps the neck in place. I can vouch for that. Do you think that you woke this morning with less symptoms because of the enforced rest?
I wish I could do something to help you.

Thinking of you,

Love
Elna x

hileena111

Aww Cris it is so good to hear from you {via Toni } She has been keeping me up to date
Glad you are feeling a little bit better.
Your take care petal and no pm's ...told Toni to tell you that OK!!!! You just read and rest
Love
Hileena

ironic

Hi Cris,

Well done for finding your Mr Browne with and ‘e’! Sorry that he has retired though. Wonky’s idea for the OT special neck collar is a good possibility, so I hope you get your appointment soon.
Well you have had your orders in no uncertain terms and you must not do any typing and rest and conserve your energies for a while. .... there has been rumours of the forum hammer being used if you don’t comply!!!

Hugs as always,
Lv, I x

julie47

Hi Toni Thankyou for your update you are very very good at this pa job



Cris I have the same problem with peeps retiring, my last rhummy dr,my gp and when I went to see this other surgeon he said he thinks the surgeon who originally took me on may be retiring :shock: (he didn't look that old and.....he still has the other job to do when this oone is done :shock: )

Glad you woke up yesterday with not as much pain and that you were able to wear the collar for a while. A good Idea :idea: to ask if you could have one made to measure.

Hope the rain has stopped where you are, today we have dull but dry.

Sending hugs and a cuppa
love juliepf xxx

A pa who is so very much in the early stages I did put you in elnas pocket (gentley)

CJHunter

Hi Cris,
Am so pleased you have been having rest and pain has easwd a bit.
Is unfortunate your previous guy has retired, the good ones always do, it shouldnt be allowwd

Hope you get to see yours soon and something can be sorted for a made to measure collar.

Take care hun, lots of tea and hugs and warm wishes.
Xx