Not all rheumy related.

dreamdaisy

Gordon Bennett girl, I've just read back. You were wise not to take the pills, I'm glad your sister is out and with you - but please remember to nurse yourself too, OK? As for apologising about the dinner - I honestly thought I was going to see the immortal words 'Pot Noodle' and 'that cheese you squeeze from a tube' but no, far better food than that indeed! I'm disappearing again now but I have been thinking of you all, and I will be thinking of you all, I promise. Take care. DD

elnafinn

Dear May

I did read your message this morning but I have been out and about,on the phone yakking and generally getting nowhere fast but it has been enjoyable. Now to spend a few moments with you.

I would have been most surprised if we had heard from you last night with your sis coming to stay, May. Typical that is of hospitals, not having the meds ready and so on, when you arrived to pick her up, after being told by them that your sis was going to be discharged. :roll: I am sure this happens all the time.

That meal last night sounded delicious. That is what we have at least once a week in the chilly weather. I have made stacks of leek soup and butternut squash soup and packet it into margarine cartons in the freezer for quick, nourishing meals, along with bread and cheese.

You look after yourself, dear May as well as being a superstar nurse for your sis. Not sure I would be too keen to be dealing with the drip when replacing with a new one and so on. With your expertise and determination, though, all will be ok, I am sure.

I hope you sorted out your gp today and I think she may see have seen for herself that you are feeling calmer about things now.

Keep up the good work but you must look after yourself too, which I am sure your sis will appreciate.

I hope you have been able to have some “me” time today.

Hugs
Elna x

kellerman

Update....
DD Pot Noodle!! never eat them,never have.
No problems with a drip just to make sure it's going through OK.Sometimes they are too slow or stop altogether,easy for me I know but something you do like riding a bike!!!!
Well couldn't get an appointment to see my GP but asked her to ring.
Receptionist did ask what about and I just said some meds.
She rang at lunchtime.So I asked her why she thought I needed these tabs.She said she thought I was a bit uptight but she had never prescribed these before.I told her they were addictive and I wasn't happy about taking them.She did actually admit she wasn't aware of this.
I only went because she said call in with the xray.
To think I could of got these and been so spaced out I would of been no good to man nor beast.
DEFINATELY changing docs.This is so frightening.
On a positive but funny thing,neither my sis or I can laugh without holding our stomachs.Me because of the rib and her well because of her stomach.We both thought this was funny,Please don't mention coughing!!!
She is eating much better.John is cooking toad in the hole,from a recipe book,don't know what pudding we'll be getting as I'm staying out of his way.
Many many thanks for all your support.I know my sister still has her other op coming up and very likely chemo but we'll cross that bridge when we come to it.
What I would of done without this forum I don't know.Bit achy today but I am coping.Stress levels way down.
At least I know I can come here for support when needed and you are all so fantastic.
Please please take good care of yourselves.May

elnafinn

Dear May

It is wonderful to see that your stress levels are way down now. I was so worried about you a few days ago. I know what you mean, this forum is great as a back up and a place you can call in and you know someone out there will reply. The longer you stay the more others get to know you and always look out for you. It is a kinda of really "warm" feeling.

I know a little about the drips, purely from being observant when visiting others in hospital and how they can stop and the need to do "flushing out! every so often or something. It also depends how the patient positions their arm as to whether the drip is working efficiently or not. Your sis is so lucky to have you there, knowing about these things and I am sure she is immensely grateful.

Ooooh, toad in the hole, a lovely meal. Send some over, please, if there is any left, which there probably won't be. Pudding as well! You have got a gem there working in the kitchen. grin: I hope you tell him that, every so often. Don't let him go.

Yes, you and your sister have a bit of a journey yet, but take it more in the "now", is probably better than leaping ahead.

It is good to hear that you are a bit less achey today, May and let's hope that improves day by day.

Yep, methinks a new gp is a good idea.

Sleep well, and hopefully in your bed and not most of the night on the settee.

Love and gentle hugs
Elna x

kellerman

Good Morning,
Sticky....I was a bit dubious about the soup as I thought The Bossy One would say "What kind of dinner do you call that"!!!!
Well had a reasonable nights sleep in bed.Got up this morning and couldn't get my "good foot" into my slipper,
I've always,as far as I remember had a smallish lump near my left toe,not a bunion but where you get bunions.Today its the size of a golf ball.
Not painful just pushing that foot over to one side.Mystery!!!!
Had to wear sensible shoes for work so have had to put them on but it looks wierd.
Sis is fine,she's been much brighter,wound also looks lots better.
Yes I am getting me time.On here with you lovely lot.
You all cheer me up even when I know you are all suffering yourselves you always give your time to other people....its just so unselfish and really truly helps.
Other sis text at 10.40 last night to ask how things are.Well answering with left hand takes me forever so I just said fine and left it at that.
She is 10 minutes away by car but hasn't been yet.I won't hold my breath.
I hope you all had a good night.Now have to get sorted for district nurse coming.
See you all later and take care. May

julie47

Hi May

I don't know how I have done this but, I haven't read up on your post for a good few days :oops:
I have read through it all now and you are an amazing sister.
I want to send you, your sister and your husband all hugs.
I hope your sister soon gets well enough to have her op and I am pleased to read that you are getting a bit of me time. I hope your arm soon improves and that your toe settles down too.
Take care
Love Juliepf x

elnafinn

Good morning, May

Hope your day goes well. Something new seems to happen to you every morning, when you wake up. I do hope that this big lump goes back to how it was very soon for you. As for "other sis" who texted, well that was a brilliant one worded reply. If she wants to call in she is welcome, aye, to find out for herself. It takes no time at all to send a text if you send them all the time. I don't and it can take me ages so I do not text often. My thumbs are shot anyways so have to use fingers.

I hope the district nurse visit goes to plan. It is good to hear that your sis is so much happier at home with you, makes perfect sense and as it is fine by you, all is going well there.

I hope you have a little me time again today and can call in here for a natter.

Hugs
Elna x

kellerman

Hi,
I blame John for kicking me while I'm asleep!!!!!
I too hope this goes down,it looks angry and red.I'm just odd.
Well district nurse has been.She said my sister could go in the bath as long as the wound was kept dry.Where do they get these young women from? This would mean 2 inches of water and when her top half was washed water would obviously run down onto the wound.
I suppose we could put a bin bag over her bottom half!!!
She's been having showers with a piece of strong waterproof fastened over the dressing and water running slowly been working OK.
Oh please I'm not a star just a big sister trying to do my best and not always suceeding.
Going to nip out for an hour to do a bit of shopping Sister is going to watch Judge Judy but John is here anyway.
Hope you are all as well as can be expected. May

elnafinn

Dear May

In that case, John will have to cook tonight! I am sure he did not mean to kick, you even if he did District nurses - what was she on? Another planet? :roll:

It is a good job that you know what to do for the best. You take care now, hope you enjoyed your retail therapy and have not tired yourself out too much. If you are happily tired then that is ok though.

I do hope that you all have a gentle weekend and you look after yourself. I am so pleased to see that your week improved for the better all round and that your sis is comfortable and calmer. At the moment I do not need to worry about you too much unless you are hiding anything from us.

Love
Elna x(())

kellerman

Oh Elna,
Just blaming John but don't really think he kicked me.
I just did some food shopping and a couple of things for Christmas.
I needed to get out even for a little while.
This is my me time but I'm tired,not shattered but could do with putting my feet up.
John thinks the kitchen is now his domain,don't know how long this will last but I'm making the most of it.Salmon coming for dinner tonight.
No need to worry about me,I'll let you know if I get really down again.
My sister doesn't have to have the drip up 24/7 its just for her meds so really I could take her out in the car but its cold and I don't want to risk it as a sneeze would probably put her op on hold which neither of us wants.
I have been reading some posts and answering where I can,but now am feeling a bit brain dead.
Feet up time,dinner soon.
Take care.
Love May

Mat48

I'm coming in on a long, long thread here to say I really feel for you May. Just struggling to come to terms loss of my mum 2 years on and fretting about attending a friend's funeral a week today but all are as nothing compared to worrying about my two sisters if something should befall them? I realised one sis was texting me a lot today which is unusual and then she mentioned MRI scan and liver problems and my blood almost ran cold. So I do understand how important our loved ones are and how awful it must be for you coping with all this with your Arther as well. You are very brave. Thanks for inspiring me to be a bit stronger!
Mat x

stickywicket

kellerman wrote:

John thinks the kitchen is now his domain,don't know how long this will last but I'm making the most of it.

Oh do that, May! Mr SW only really started to cook when I had my knee revision. He's now quite good at it. The kitchen suffers but we can't have everything!

Hope you all have a s good a weekend as possible.

hileena111

Hi May
Make the most of John in the kitchen.....Peter has taken over the kitchen quite a lot and considering I'm a vegetarian and he isnt its a bit more work.
As far as John is concerned......let him think he can do everything better than you.....we know better
Sounds as if you would def be better keeping Jackie in the house because of the upcoming op.
Tired but not shattered sounds quite good.....if that makes sense,,,,,I know I can feel tired after doing things or being somewhere but quite content.....not absolutley shattered.
So as you say feet up now

Love
Hileena

kellerman

Hi Everyone,
Well everything sort of ok this morning.We all had a good night but heyho toe is still like a golf ball BUT NO PAIN.
Maybe some one will make the effort to come and see my sister today,my daughter is coming tomorrow,but she usually does on a Sunday.
I hope its not that idiot district nurse this morning.
John follows recipes from a book as he is a farmers son and his mum did everything so all this is pretty new to him,but I think secretly he's enjoying himself.
My SIL has the funeral sorted,no help from me.It's on the 21st.Seems a long time but with it being sudden there was a PM.
Well haven't had my shower yet so better get on with it.
See you all later.Please have a good a day as possible and take care.May

skezier

hi May,

just dropping in and leaving a ((((( ))))) and a hope that things will get easier for you all round. hang in there and thinking of you. Cris xx

lindalegs

A hug (((((((( ))))))) from me too May and sorry I've been neglecting you. It doesn't mean I don't care, you and your sister are much in my thoughts.

How lucky to have your own chef on hand sometimes it's a lot of effort even thinking what to have for a meal let alone all the prep and cooking.

Take care and hope your toe settles down.

Love,

kellerman

Hi,
Sister asleep so I thought I'd come back and answer.....
Mat...I've read your thread.Please,I know its hard,but try not to worry about your sister.You don't know for certain there is anything much to worry about yet.I don't envy your trip and don't think I could do it.
Even the hour I spent out yesterday I had to take a breather sitting down but the staff in m&s where great and put shopping in the car for me.

Hi Cris, What are you doing posting?Toni has passed on your supportive messages,for goodness sake take it easy.

Linda,I never thought you were neglecting me.You just take care of yourself.John likes his food so whatever he cooks,we'll eat.

Well District nurse was ok today.About mid forties I would say.
She did ask me what I'd done with my foot and thinks it could be a disjointed bone.Not sure as it could be anything.I'll see how it goes.
We had a late lunch today so coco's haven't kicked in yet.
I'm hoping my bloods are back sometime this week and I can get some answers.
Had quite a busy morning,washing bedding and towels as its sunny and I like them on the line outside.
I am giving John a bit of me time.He is going to watch the match at the club with his friend BUT....there is going to be a cassarole in the oven and I have had strict instructions not to attempt to take it out....probably just as well as I might drop it.
Bit achy...probably due to late meds.
Just looked at calendar....I have an oncology apointment on the 21st.I have these every 3 months just to make sure my cancer hasn't come back again.Oh sugar...more blood tests.Physio that morning as well.
Not going to miss that...hydrotheapy pool.
Have a good weekend and I hope the sun shines tomorrow too.
My fondest thanks to all you lovely people. May

dreamdaisy

Just a quick pop-in May, I haven't forgotten you but life is throwing up one or two problems at this end. I have to take you to task on one thing: you say you've never eaten a Pot Noodle? :shock: They are indeed truly hideous things but every one in a while a Sweet and Sour just has to be done, it's so ghastly it's lovely.

I am pleased to hear that you are coping - and with some style, methinks. Take things as steady as you can, be kind to yourself and ignore the apparent shortcomings of others. I forgot to take my bell with me, so there will be lots of ringing tonight to make up. I am thinking of you. DD

kellerman

Morning everyone,
I knew I was brain dead.Physio,funeral,oncologist all on the 21st.All different places.....Well I will have to just show my face at the funeral and be off.
Sis will or should be back in hospital by then,luckily same hospital as oncologist so visiting is easy.
If I come on here and moan on the 22nd you'll know why.
Where has the sun gone this morning,drizzling rain here,even my little dogs not happy.
See you all later May

Mat48

Sun's come up here to Northern Scotland May - but only just! Can't believe you've got so much going on in one day - sounds really hellish will be thinking about you - makes my London week and funeral seem positively manageable! Good luck. Mat xx

stickywicket

Don't overdo it on 21st, May. See how you are on the day. If people don't understand they damn well ought to. Look after yourself.

kellerman

Hi,
I won't overdo it.Feeling a bit rough at the moment but I don't know why as I haven't done much more than any other day.
Just achy and really tired. I didn't have a really bad night,so no reason for this.
It's making me feel a bit weepy,although that could be due to the fact I've had a houseful today....other sister and husband,2 of my daughters and my youngest son.All turned up within 10 minutes of each other.
Just a bit much for my sis as well.....shes asleep.
Much as I appreciate them eventually showing an interest did it really have to be all at once and no advance warning.
Oh what do I sound like....I moan if they come....I moan if they don't.

Glad they didn't all come for dinner.Don't want to upset John.
Well this is my me time.
Thanks for all your support,you keep me sane.May

Mat48

Hey May you keep us all sane too. If you feel weepy then indulge - sometimes it's the only way and you've plenty of reason to feel very tired after all. I feel incredibly tired just now too - not sure whether it's SAD from Vit D deficiency or coming off the Prednisolone slowly or just life because the arther's not back yet (well it's quite not gone away either!) but I'm not fighting it this time. It seems fair enough in my circs let alone in yours. This family of yours need to learn to pace things better for your and your sister's sake it seems to me? Moan away all you like please! Mat xx

elnafinn

Dear May

Yes, too many visitors can be exhausting both for you and your sis. Peeps do not understand sometimes that it is best to stagger visits. Many a time I was entertaining visitors that came to see my mum whilst she was asleep or just lying there not taking part!

No wonder you are feeling all over the place, weepy and so on. Your emotions are all over the place worrying about yourself, your sis and everyone else. It takes a tremenduous toll on us, and every so often our body tells us that and we have to give in for a while and recharge our batteries.

Nevertheless you are doing so well and what with the stress of the 21st is it, that will not be helping either.

Sorry I have not been around over the weekend, been doing other things but that does not mean to say that I have not been thinking about you and yours.

Love
Elna x

kellerman

Hi All,
Well it was a normal sort of day to begin with.I even managed to smile at that stupid district nurse and if she'd stayed more than 5 minutes I would of asked her to show me how to bath my sister without getting her wound wet....then everything went pear shaped.
Hospital rang...they are not taking her back in until Dec 2nd and because of the circumstances ME they are sending a social worker out to see if they can get her in somewhere from next Monday to give me a break.
NO CHANCE.So she was in tears and I was livid.So social worker is coming tomorrow but even John said she is wasting her time.
I've managed this far so what difference will 11 days extra make.
Apparently they are short of staff.
Now for the next shock....my middle daughter has had a bad shoulder for at least 2 years.She was eventually persuaded to go to the doc 2 weeks ago.She had bloods taken but she didn't know what for.Anyway she got results today.Thyroid ok and she's not diabetic.She has a low blood count and inflamataty markers are high.They have taken more blood today....again she didn't ask why.I told her she should of asked for a print out.
So don't really know what to think.She's 37.She only went to the docs as she was so tired and the pain had spread to her other shoulder.
Well everything is calm now....I've managed to convince my sister that we can cope ok and we want her here.
I'm tired now but its all this messing around today and worrying now about my daughter.
We should of all stayed in bed this morning methinks.
Take care you lovely lot.Might see you later May