An update on Frogmorton.

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  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    (((()))) (Today's delivery :wink: )
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    Sending some more (((hugs))). xx
    Christine
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    Hoping things are still improving (((()))) xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    They are waiting to be collected from the hospital! :D Hopefully a peaceful week-end at home is beckoning . . . . my creaky fingers are firmly crossed. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • frogmella
    frogmella Member Posts: 1,111
    edited 30. Nov -1, 00:00
    Oh, I do hope so DD! Sending more love and hugs your way, Toni and Lucy. XXX ((()))
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Thanks DD
    Toni sorry I m late have been on a little hol..but I am so pleased to see that Lucy has eaten a bit more more..I can just see you willing every mouthful...I hope the weekend goes smoothly and you can both enjoy..(((()))) xx
    Love
    Barbara
  • toady
    toady Member Posts: 2,511
    edited 30. Nov -1, 00:00
    Oh good, and incredibly well done to Lucy for getting up the gump to even try eating after all the downturns. Glad there's been progress, and a better weekend ahead I do hope. xx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    Sending lots of positive vibes that you and Lucy have a good weekend. xx
    Christine
  • frogmorton
    frogmorton Member Posts: 30,076
    edited 30. Nov -1, 00:00
    Good Morning Forum friends :)

    Thank you all for your kind wishes - I have done my usual welling-up malarkey reading them all :oops:

    Thanks to you DD for keeping everyone in the loop. :)

    We got home yesterday afternoon thanks to Lucy's lovely Step-Dad :D

    The nausea was incredibly difficult to control and she was very dehydrated her liver and kidneys starting to protest (bloods evidenced that). Her weight which had been 57kg end of November was down to 43.40kg

    They suggested allsorts including an NG tube, (but decided with the vomiting it would be unsafe), she had gallons of fluids and in the end (some of you will remember she has epilepsy?) all meds IV.

    I suggested the new 'patches' (like the ondansetron in 'type') so we can prevent it in future. Turns out as yet not able to get hold of them they being new :roll:

    Finally they started her on evil anti-psychotic stuff:
    levomepromazine (Nozinan for short) in a very low dose 2xs daily which worked straight away :)

    (I am told there are lots of reasons for being sick and anti emetics for each - like having a full stomach (metachlopramide helps with this), 5HT3 inhibitors like ondansetron do something to prevent the vomit receptors (something like that) being triggered and also anxiety (anticipation) which is hard to control and the new one helps with most of them).
    http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Nauseavomiting.aspx?returnUrl=http://www.macmillan.org.uk/Cancerinformation/Livingwithandaftercancer/Symptomssideeffects/Othersymptomssideeffects/Nauseavomiting.aspx

    That explains better than me :oops:

    BUT....she was asleep almost all day so we had to stop the day time dose and stick to night time.

    It worked :)

    So now she's home and eating!!!

    I am a happy Mum :)

    I hope we don't need the tablets for too much longer. She had chemo on Thursday too (I know I couldn't believe it either!!).

    They are going to try to wait now till after her prom before doing any more.

    Sorry that was so epic!!

    Thanks to Elizabeth, Stickywicket, Hileena, Toady, Christine, Barbara, Joan, Tony, Frogmella, Susiesoo, Marie and Mig (I've already thanked DD, but thanks again)

    Love to you all

    Toni xxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Toni epic it was and I love it, so very very pleased for both of you, its so hard to watched your litle girl going through this but..she is eating and will get stronger...I hope mums eating as well...many hugs to both of you (((())) xx
    Love
    Barbara
  • toady
    toady Member Posts: 2,511
    edited 30. Nov -1, 00:00
    Oh hooray that the drugs have worked :D so glad to hear she can come home & work on eating & building herself up.. is there any chance the patches will become available or is it really not something that's in the near enough offing.. hope things continue in the current mode & you can tail the tablets off. Amazing that Thursday's chemo could be ticked off too, all excellent news. Best as always, toady. xx
  • dachshund
    dachshund Member Posts: 9,176
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    i hope you have a good weekend i hope the sickness is over.
    thinking of you both ((((((((Toni and Lucy))))))))
    thank you for the video that helped to explain things.
    take care
    joan xx
    take care
    joan xx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi,
    Just come on line today.......8.10pm :o
    I'm so pleased that things are going right for a change.
    What you never mention and what worries me sometimes is how are you?
    This stress must be awful {even without arthritis} Please take care
    Love
    to Lucy

    Hileena xxx ((((())))))
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    It's wonderful to hear that Lucy is feeling better and managing to eat again. Hope you have a lovely weekend and also hope you are looking after yourself Toni. xx
    Christine
  • frogmorton
    frogmorton Member Posts: 30,076
    edited 30. Nov -1, 00:00
    Hello to you all and well-done for reading my epic post and extra well-done to anyone (like Joan) who looked at the link from Macmillan.

    Christine and Hileena I am behaving I promise and all being well the girls (both 19) will look after Lucy tomorrow with my bro 'on-call' while my lovely husband takes me to Wimbledon ;)

    Joan - she is still not being sick at all!! I hope you also have a good weekend.

    Toady - I am sure the patches will become available soon, but maybe not in time for Lucy at least we are coping now anyway :) Yes another chemo done too :)

    Barbara it is DREADFUl watching Lucy go thorugh this, but I am aware how lucky we are that it is at least treatable. I promise I am eating too ;)

    Love to you all

    Toni xxx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Toni
    Do enjoy your time away with Paul

    Love
    Hileena
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Wimbledon! I can't think of anyone who needs and deserves it more. Have a lovely time and have a drink of something nice for me, please :D
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • frogmorton
    frogmorton Member Posts: 30,076
    edited 30. Nov -1, 00:00
    Thank you Hileena and stickywicket :)

    I intend to have strawberries and cream and maybe a glass of bubbly if it's available :wink:

    love

    Toni xxx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    Glad to hear you are looking after yourself Toni. Wimbledon? Fantastic. Hope you have a great day and enjoy your strawberries and cream and bubbly. You deserve it. I'm sure Lucy will have a lovely time with the girls. It's good to hear she is not being sick now.
    Christine
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi again Toni
    I'm so pleased that you are having some ME time.....great news :wink:

    Love
    Hileena
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Oh Toni you are going to Wimbledon...I am so very pleased for you :D just what is needed at this time, you enjoy and we want to hear all about it when you come back.. :D brilliant....xx
    Love
    Barbara
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    Glad to see the drugs have worked and Lucy is managing to eat again(and keep it down) I hope you have a super day tomorrow Toni I don't know anyone that deserves it as much as you do with what you have been through this past six months................enjoy...................Marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • frogmella
    frogmella Member Posts: 1,111
    edited 30. Nov -1, 00:00
    Toni, it is so good to hear that at last something has worked and Lucy can eat. You must be very relieved. I hope you have a lovely time at the tennis tomorrow, enjoy your well deserved drinky and strawberries with cream. :D
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    I had to pop in again to say have a really lovely time and I am sure you will...Lucy is in good hands :) so hopefully you can relax a little maybe the bubbly will help.. :wink:(((()))) xx
    Love
    Barbara
  • dachshund
    dachshund Member Posts: 9,176
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    i hope you all had a good weekend. Toni enjoy Wimbledon.
    ((((((((Toni and Lucy))))))))
    Lucy try to keep up the good work.
    take care all
    joan xx
    take care
    joan xx

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