An update on Frogmorton.

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Comments

  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Lovely pics of a very brave young lady ..and you scrub up well Toni...the holiday has done you all good..I am so pleased....xx :deckchair:
    Love
    Barbara
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Aw thanks Stickywicket - it was VERY scary! Especially as the phone connection was so erratic, but we did it and it paid off :)

    Barbara thanks but probably advisable not too zoom in on my face!!! :lol: The holiday has done us a power of good :)

    Love

    Toni xxx
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Your family are very brave but you have been a great role model. Mig
  • dachshund
    dachshund Member Posts: 9,170
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    I hope you have all had a good week.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Tony
    I'm just getting a chance to catch up and look through all the pics...they are great. What a fantastic time you seem to have had
    What you both needed

    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Mig - I don't know about role model, but you do what you've got to do for your kids don't you? I was telling the rheumatologist on Wednesday many nights I lay there in the hospital on the pull-out by Lucy thinking....I won't manage tomorrow, but I always did somehow :)

    Thanks Hileena - we did need it definitely and thoroughly enjoyed ourselves. Lucy looks great doesn't she? Hope you are all ok?

    Joan - I hope your weather is better than ours! Lucy and Paul are off to the racing. They will be inside eating food which is a good thing as it's pouring down.

    Love

    Toni xxx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    Yes you did manage it Toni because you are a strong woman, just as Lucy is. Hope she and Paul have had a lovely day. Eating food at the racing, or anywhere else, sounds good to me. :cheers:
    Christine
  • joanlawson
    joanlawson Member Posts: 8,681
    edited 30. Nov -1, 00:00
    Lucy is an inspiration to us all, Toni, and so are you!

    Love Joan :D
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  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Thanks both :) :oops:

    Lucy had a great time at the racing luckily indoors with all the rain we had last night :roll:

    I got a night out with friends eating veggie chilli yum :wink: came home with some books to read and had a good laugh too.

    Love

    Toni xx
  • dachshund
    dachshund Member Posts: 9,170
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    I hope you have all had a good day.
    ((((((((Toni and Lucy))))))))
    take care all Lexi has her stitches out on Thursday.
    joan xx
    take care
    joan xx
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Tomorrow then for Lexi Joan? I hope the vet is pleased with her progress.

    Well yesterday Lucy and I got the train to the QE (fun actually!) for epilepsy clinic. She is on a LOT of medication and Dr Tim is hoping some can be reduced as her epilepsy has been nicely settled for over 6 months.

    So we are starting to drop the does of the keppra from this morning. Scary, but hopefully will be ok as maintenance chemos are more gentle.

    While we were in we went up to the YPU to see some friends particularly the really poorly lad and his Mum.

    Things aren't great there, but we still had a laugh :)

    Love

    Toni xxx
  • dachshund
    dachshund Member Posts: 9,170
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    I hope it all works out well for Lucy.
    I bet your friends were pleased to see you yesterday.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    It's good that the young lad and his mum are still able to have a laugh. It'll keep them going. Hope all goes well for Lucy while she reduces her meds. xx
    Christine
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Tony
    I hope things work out for Lucy....it is such a scary thing having epilepsy meds reduced.
    I remember fighting against it until the GP said if you don't let me reduce them I wont give you a prescription!!!!
    So he reduced them....I was scared but everything was OK

    Hope everything is OK with Lucy and that poor family....what they must be going through

    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    That's reassuring to hear Hileena. Thing is she's on 3 ep meds and as you know they prefer you controlled on one if possible.

    Made a start yesterday morning :?

    Joan how did Lexi get on? Was the vet happy?

    Off to the QE again for Lucy's Intrathecal. She now wants to try it without any sedation. Mind you she usually was awake anyway for the procedure and fell asleep afterwards and Dr Tim won't let her suffer I'm sure.

    Hope I get 5 mins to pop up to see Mum and Lad on the ward.

    Love

    Toni xxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hope all goes well for Lucy today ...it must be awful seeing the young man so poorly..you must feel so helpless but Im sure it will help his mum you calling in to see them..xx
    Love
    Barbara
  • dachshund
    dachshund Member Posts: 9,170
    edited 30. Nov -1, 00:00
    Hello Toni and Lucy
    I hope everything went well with Lucy and I hope you managed to see the lady and her poorly son.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Well Lucy had a dizzy spell and was tachycardic and dehydrated so they gave her IV fluids and she agreed to sedation.

    She is fine again now :)

    The lad!! Well...remember he was given 9 months in August last year.....the radiotherapy has shrunk the tumour in his spine so he can walk again :)

    So a happy day for them both!!! He can go home tonight/tomorrow until next chemo.

    Love

    Toni xxx

    Ps Poor Dr Tim had to rush off to the dentist after doing Lucy's chemo!
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi
    That's great news about the lad.
    Hope Lucy is OK.....I'm on 2 EP meds and they all keep telling me that MONOTHERAPY is the way to go now....no one is on 2 anymore :roll:

    I'm afraid I just say to them.....its not broke so don't fix it!!!!!!
    Leave well alone...but you know me :lol:

    How are you coping

    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    I'm coping thanks Hileena!! You know what it's like - I do hope the family are all well??

    I know they want you under control on one medication, but poor Lucy has been counting the hours until she can learn to drive. Her friends are all passing their tests now :(

    For you and the other lass on here who has epilepsy 'leave well alone' is what you want being well and drivers already. :roll:

    Lucy's Epilepsy Nurse Specialist is lovely though :) Not as nice as her Dr Tim of course....she adores him :)

    Love

    Toni xxx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi Tony
    That's good....it makes such a difference when you have nice nurses/docs etc......Esopecially to a young lady {not a child lol} but you know what I mean.
    Take care
    Love
    Hileena
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
    Glad Lucy is ok again. She was brave to try without the sedation. Good news about the lad whose tumour has shrunk. Poor Dr Tim. Hope he is ok now too. xx
    Christine
  • frogmorton
    frogmorton Member Posts: 30,063
    edited 30. Nov -1, 00:00
    Thanks Hileena - I expect Lucy needs to wait till meds are settled before driving - safety first :)

    Christine thank you too - Dr Tim last seen 'power-walking' towards University (dentist) :lol:

    Lovely day today :deckchair:
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Glad that Lucy has another out the way...very wise to have the sedation bless...hopefully the epilepsy will be controlled very soon then she can be back to a normal teenager ..and good news for the young man...hope its continues help him ...xx
    Love
    Barbara
  • Cate
    Cate Member Posts: 280
    edited 30. Nov -1, 00:00
    Toni, I have only just seen the pics of Lucy.....I know, I'm a bit slow!.....What a little beauty she is. Like her mum eh? The blue of her eyes is quite stunning, and she looks so well. You must be very proud. She is going to be a heartbreaker.x.

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