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Looking to chat with adults who have had RA since childhood.
Hi, I was diagnosed with JIA when I was 2 years old. I am now 42 and have just had my fourth joint replaced. Due to long term steroid use, I have had many complications and struggle to heal now. I dont feel like my doctors are particularly supportive, and definitely do not take in to account that I have grown up with this…
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Sudden flare up/attack
Hi I've had JIA since age 2 I'm now 40s have bilateral hip/knee replacements and not had severe flare ups for years, but every now and then I'll get a sudden attack which has always happened in the night, I can go to bed fine and wake up now and then as normal then ill wake up again and my hands, arms will be stiff…
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I need some advice please
on the 21 November I am booked to have steroids injections in my ankles and my wrist and potentially my knees ( I have jia) and I’m in quite a lot of pain most days they want to put me to sleep for the injections my birthday is on the 23 November wondering if anyone here has had these injections and can give me some…
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Shoulder Pain
I’ve been in a flare up for almost a year now but have only had my knees affected and minimal fluid so my Doctor has been happy for me to stay of medication (I was struggling with injections) but within the past week or so i’ve started getting pain in the front of my left shoulder, there’s no swelling as far as i’m aware…
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Ia any forum for parents of child diagnosed JIA
Hi, My 3-year-old daughter was diagnosed with JIA last May. I'm reaching out to connect with parents in a similar situation for sharing experiences, support, and advice.
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New member - arthritis flare up after having kids
HI everyone, I'm new to this forum and thought I'd post my story in case anyone has had a similar experience and can give any advice I was diagnosed with JIA aged 11 following years of eye problems. It only affected one joint - my right knee - and was never a massive problem. It came and went for a few years then i went…
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JIA recurrence following pregnancy
HI everyone, I'm new to this forum and thought I'd post my story in case anyone has had a similar experience and can give any advice I was diagnosed with JIA aged 11 following years of eye problems. It only affected one joint - my right knee - and was never a massive problem. It came and went for a few years then i went…
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bruising - JIA
Hi everyone. my son has JIA and he has now been on actemra - tocilizumab for 2 months. he has monthly iv infusions. its been 3 weeks since his last infusion and over the last 3 days i have noticed little bruises appearing on his knee (this is where the arthritis is and he has not walked for 11 months). he had a blood test…
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Covid and Tocilizumab
Hello, I am day 6 positive for Covid and have stopped my Toc (11 days since last dose) but can feel I'm starting to get to achy and flare-like. Does anyone know when it can be resumed? Is it once I test negative? I'm confused as Toc was being used to treat Covid. I'm waiting for Rheumo team to contact me but that takes…
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Hi 👋🏻
Hello everyone, hope you are all well. Im Charlotte, I’m 32 and have had JIA since I was a baby. I have never known life without this disease. I have 2 children who are fab and the eldest especially is so understanding, the youngest is really starting to get to grips with mummy’s disability. i am currently recovering from…
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Both wrists fused
Hi all, I got the call yesterday with a date for surgery. I have a week to hand over my job. Shield for 2 weeks then surgery. I’m terrified. I had my left wrist fused in 2015 - it needs further surgery. But in less than 3 weeks I am having my right wrist fused. I tried to find someone before with both wrists fused but I…
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Finally getting on here!
Hello, I'm 35, had JIA since 7. Had a number of knee synovectomies over the years, luckily no joint replacements! My arthritis flare has generally been horrendous since 2014 but during that time I went into complete remission for my pregnancy, had the most awful flare of my life post partum. Sadly no more children for me…
