New diagnosis DISH Disease

Options
llandysul
llandysul Member Posts: 5
edited 7. Jul 2025, 10:21 in Living with arthritis

Recently diagnosed with DISH disease. It has been 18 months since I first contacted GP about severe neck ache. It took 8 months to get an MRI scan appointment and then another 4 months to get a follow on CT Scan, plus another 8 weeks for the consultant to give me the diagnosis. The Consultant asked me to hold on while he googled DISH as he wasn't sure what it was…! I have now real loss of balance and mobility issues….pain is often quite muted but sometimes neck, and then because of my balance and walking may cause pain in hips and knees….There appears to be very little treatments available apart from physiotherapy and pain killers which I don't normally need….I can often manage to walk for 30 minutes or so each morning, but by lunchtime each day almost little balance and mobility and very fatigued.

Would love to hear of any useful suggestions on coping with this…..I am 72, usually used to be out and about 3 to 4 times per day with dog, not diabetic or overweight.

Comments