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Having RA and palindromic rheumatism at the same time
Hi, I was diagnosed with RA 2.5 years ago and I've been on a few different DMARDs since. Last summer I developed sudden flare ups that would migrate from one area to another causing inflammation, stiffness, pain and often severe reduction of movement. The flare ups would last a few days and then disappear - just to appear…
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Advice on Axial Spondyloarthritis
Hi, just wondering whether I put up with this pain or I need to see my GP or Rheumatologist. My rib cage is very painful when I breath in - so can only do shallow breathing. I know this is part of AxSpA but any recommendations on how to stop the pain would be really apprieciated. I am on biologic injections but just lately…
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Biologics
Hello! I got diagnosed with RA in March 2024 after my symptoms started in December 2023. The last 6 months have been a whirlwind of medication and lifestyle changes which I am slowly adjusting too. I have been on triple therapy now for around 8 weeks with no difference- I feel like I’m in a constant flare up! the good news…
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Thoughts on Adalimumab?
Hi all, New here and hoping for some advice from fellow RA’ers! I’m mid 30s and was diagnosed a few years ago, have been on methotrexate tablets (made me ill), went on to Metaject and (not able to tolerate more than 15ml), and take hydrocloxi - still don’t know how to spell or say it! - every other day. My next option is…
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Adalimumab and DVT
Hi, I'm a newbie to the community. I've been diagnosed with RA for about 5 years. Progressively getting worse despite various medication. I've had one dose of adalimumab and promptly acquired multiple clots in my left leg! Feeling very sorry for myself! The wonder medication hasn't worked, but left me in alot of pain and…
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Biosimilar vs Imraldi
Hi Community - I have been on Imraldi for 2.5 years now (PSA) and it’s changed my life. Today I received a letter from the NHS stating they are moving everyone to a BioSimilar (Yuflyma) - assuming due to cost. I am going to contact my consultant but wondered if anyone has any experience of changing from one to another? I’m…
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Adalimumab and it’s long term side effects
Hello, I was wondering if anyone on here could share any experiences (positive and negative) and any knowledge regarding Adalimumab. I am due to start this biologic after a year on methotrexate and hydroxychloroquine, both of which haven’t manage to keep my RA under control. I am feeling slightly overwhelmed and anxious…
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PsA just started Amgevita
hello I’m new on here. Had PsA for many years (34). I’m 52 now. Just started biologics. Did anyone else feel dizzy & tired day after injecting? I’m just wondering how long I’ll feel like this, if it’s a settling in period. cheers Lou
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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Hi! New to the forum a little about me
My story begins as a little boy learning to play tennis with his older brother and being taught by our father. My dad was a really good tennis player and did very well on the court throughout his years of playing. My arthritis journey start out in BC with some itchy patches of skin behind my knees and and in front of my…
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Patient education session (biologics)
Hello everyone, this in my first post here. I have a patient education session tomorrow because I'm due to start on adalimumab for PsA. I've got a list of questions, but are there any obvious ones I may be missing?
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Biologics
Hi all, after trying 3 types of dmards, am still on methotrexate but I now have an appointment to start the process with a view of going onto biologics. Can anyone give me any info on what is involved in the process? I know that I’ll need an mri and 4 inflamed joints (I think). Also, what biologics are there to try please?…
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Newbie here, Leflunomide please help!
Hi all, I’m 33 and was diagnosed with PsA at 16 and it has mainly always been under control apart from for the last 6 months or so where I’ve really struggled with pain and mostly fatigue causing me to have to reduce my hours at work which is not good due to lack of income! Anyway, I have been on 15mg methotrexate for a…
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Biologics next day side effects
Hi! New to the community but long time PsA warrior! I have been on various biologics such as Humira and etanercept but wondering what people have noticed or consider normal side effects that comes as part of these therapies! For me, I seem to always experience a high pain day/ moving is significantly harder the day after I…
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Struggling with biosimilars
Hey, I’ve been on Idacio for a few months after delaying due to Covid. I do the injections myself, but every time I’m really struggling more and more. So much so that I couldn’t bring my self to do it today 🤦🏼♀️😣 I keep telling myself it’s a positive and it will help me… but I just can’t help get anxious and stressed then…
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Low Mood on Biologics
Hi has anyone experienced very low mood whilst on Adalimumab. It is mentioned on the side effects. After every injection - a few days after the low mood starts. It seems to be getting worse the more weeks go on. Due to see consultant next week. I have psoriatic arthritis.
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Biologics and flare ups: what do they mean?
Hello, I have quite a specific question related to biologics and wondered if anyone might have experience / knowledge. I finally started the biologic Amgevita 6 weeks ago, after getting diagnosed with RA in October 2022. No other treatments had worked for me at all. With the biologic I felt an improvement after 2 weeks.…
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Anyone using adalimumab?
Just need to vent somewhere I’m starting adalimumab injections tomorrow morning, the nurse just phone to say she will be here at 9 to help me and talk me through things . Can’t believe it’s come to this 🙁 Anyone have any advise or tips ? Sorry just needed a rant
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When it really starts to bug to you 🐛
I've had ra for 20 + years. I was diagnosed at 30. I've been lucky so far, treatment worked very well the first ten years. I've had a few very bad but shortish flares and stopped working 5 years ago. I've still been able to potter about though and do some nice things. The last few years have been a bit yucky. I've tried…
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JAK inhibitors and Tocilizumab
Anyone have any insights on JAK inhibitors or Tocilizumab? Having manage my RA successfully since 2004 and able to do a very stressful and physically demanding emergency services role, but since 2017 found my combination of DMARDs less effective and had to be enhanced with biologics with mixed results. The above suggested…
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Which Meds
Hi everyone, I am currently taking sulfasalazine whilst trying for a baby however still struggling with pain. My rheumatologist has referred me for the TB screening for biologics however I am wary as I know very little about the long term impacts of these drugs. I'd love to understand the pros and cons of Biologics,…
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Cigarettes & Alcohol (& Adalimumab)
Hello people Can anyone offer any advice on drinking alcohol and biweekly Adalimumab injections? The information I have found says it's ok in moderation. I'm not planning to go mad but would like to have a few beers in the garden now the warmer weather has arrived. I stopped drinking and smoking completely on new years eve…
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Adalimumab Amgevita Injection every week
I have been injecting Adalimumab Amgevita now for 6 month every 2 weeks. It has worked for me in so much that I have no inflammation nor are my joints tender to the touch but I am still in severe pain and have to take painkillers every day. I also take Methatrexate which seems to give me side effects, weight on my chest,…
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Biologics
Has anyone every been on orencia biologics, also.kmown as abatacept. I am currently waiting to go ok the injections and I was wanting to know people's experiences. I am constantly swollen and in pain, my back is painful too at the minute. Has anyone any experience with this medication please
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Biological injection reaction
Hi, has anybody else had a biologic and then nearly 2 weeks later a rash appears on your thigh where the injection was? I developed a rash yesterday a circular one with hives. It’s quite itchy and hot to the touch it’s quite a delayed reaction but not sure if it’s normal?
