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Am I going insane?
Hello all, I'm new to the community but not to the disease. I was diagnosed when I was 15 with RA, which has recently been rediagnosed as JIA (you say tomato, I say JIA...). I had been happily living with remission (apart from horrendous fibromyalgia), for the last 20 years but had a flare last year that left me nearly…
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Having RA and palindromic rheumatism at the same time
Hi, I was diagnosed with RA 2.5 years ago and I've been on a few different DMARDs since. Last summer I developed sudden flare ups that would migrate from one area to another causing inflammation, stiffness, pain and often severe reduction of movement. The flare ups would last a few days and then disappear - just to appear…
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30yr old recently diagnosed with RA
Hi all, I’m Katie and was diagnosed with RA about 9 months ago it has recently got quite aggressive and they are going to start me on biologics. as well as going back on steroids. it has been quite draining and at times struggling with my mood, which is normally when I feel like I can’t do much for myself. has anyone…
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Biologics treatment and coronavirus
Hi, im getting slightly concerned, I’ve been on biologics for nearly 20 years, I was part of the pre NICE trial group. But now I’m getting a bit worried about coronavirus because of the fact the treatment seriously suppresses the immune system, is it a bit of a death sentence to have it if I was then to catch the virus?…
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Increasing nausea......
I have been on Methotrexate for almost 11 months now, by Metoject injections. Apart from feeling a bit "below par" the day after the injection I haven't had any side effects since my Folic Acid was increased from 1 tablet a week to 3. My R.A. symptoms/pain haven't improved so just before Christmas I started on Yuflyma as…
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Benepali injection & being taken seriously
Hi all I have been diagnosed with Rheumatoid arthritis since 9 months old. My recent diagnosis is psoriatic arthritis. I have been on Humira / Adalimumab for around 7 years but had constant flare ups in my ankles knees and elbows leading to endless amounts of steroid injections. I have now been on Benepali for around 5…
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Thoughts on Adalimumab?
Hi all, New here and hoping for some advice from fellow RA’ers! I’m mid 30s and was diagnosed a few years ago, have been on methotrexate tablets (made me ill), went on to Metaject and (not able to tolerate more than 15ml), and take hydrocloxi - still don’t know how to spell or say it! - every other day. My next option is…
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Advice on Axial Spondyloarthritis
Hi, just wondering whether I put up with this pain or I need to see my GP or Rheumatologist. My rib cage is very painful when I breath in - so can only do shallow breathing. I know this is part of AxSpA but any recommendations on how to stop the pain would be really apprieciated. I am on biologic injections but just lately…
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Biologics
Hello! I got diagnosed with RA in March 2024 after my symptoms started in December 2023. The last 6 months have been a whirlwind of medication and lifestyle changes which I am slowly adjusting too. I have been on triple therapy now for around 8 weeks with no difference- I feel like I’m in a constant flare up! the good news…
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Adalimumab and DVT
Hi, I'm a newbie to the community. I've been diagnosed with RA for about 5 years. Progressively getting worse despite various medication. I've had one dose of adalimumab and promptly acquired multiple clots in my left leg! Feeling very sorry for myself! The wonder medication hasn't worked, but left me in alot of pain and…
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Biosimilar vs Imraldi
Hi Community - I have been on Imraldi for 2.5 years now (PSA) and it’s changed my life. Today I received a letter from the NHS stating they are moving everyone to a BioSimilar (Yuflyma) - assuming due to cost. I am going to contact my consultant but wondered if anyone has any experience of changing from one to another? I’m…
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Adalimumab and it’s long term side effects
Hello, I was wondering if anyone on here could share any experiences (positive and negative) and any knowledge regarding Adalimumab. I am due to start this biologic after a year on methotrexate and hydroxychloroquine, both of which haven’t manage to keep my RA under control. I am feeling slightly overwhelmed and anxious…
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PsA just started Amgevita
hello I’m new on here. Had PsA for many years (34). I’m 52 now. Just started biologics. Did anyone else feel dizzy & tired day after injecting? I’m just wondering how long I’ll feel like this, if it’s a settling in period. cheers Lou
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Anti-TNF
Hi all I'm about to start anti tnf injection (Hyrimoz) is or anyone using these and what are the side affect if any
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Hi! New to the forum a little about me
My story begins as a little boy learning to play tennis with his older brother and being taught by our father. My dad was a really good tennis player and did very well on the court throughout his years of playing. My arthritis journey start out in BC with some itchy patches of skin behind my knees and and in front of my…
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Patient education session (biologics)
Hello everyone, this in my first post here. I have a patient education session tomorrow because I'm due to start on adalimumab for PsA. I've got a list of questions, but are there any obvious ones I may be missing?
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Biologics
Hi all, after trying 3 types of dmards, am still on methotrexate but I now have an appointment to start the process with a view of going onto biologics. Can anyone give me any info on what is involved in the process? I know that I’ll need an mri and 4 inflamed joints (I think). Also, what biologics are there to try please?…
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Newbie here, Leflunomide please help!
Hi all, I’m 33 and was diagnosed with PsA at 16 and it has mainly always been under control apart from for the last 6 months or so where I’ve really struggled with pain and mostly fatigue causing me to have to reduce my hours at work which is not good due to lack of income! Anyway, I have been on 15mg methotrexate for a…
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Biologics next day side effects
Hi! New to the community but long time PsA warrior! I have been on various biologics such as Humira and etanercept but wondering what people have noticed or consider normal side effects that comes as part of these therapies! For me, I seem to always experience a high pain day/ moving is significantly harder the day after I…
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Struggling with biosimilars
Hey, I’ve been on Idacio for a few months after delaying due to Covid. I do the injections myself, but every time I’m really struggling more and more. So much so that I couldn’t bring my self to do it today 🤦🏼♀️😣 I keep telling myself it’s a positive and it will help me… but I just can’t help get anxious and stressed then…
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Low Mood on Biologics
Hi has anyone experienced very low mood whilst on Adalimumab. It is mentioned on the side effects. After every injection - a few days after the low mood starts. It seems to be getting worse the more weeks go on. Due to see consultant next week. I have psoriatic arthritis.
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Biologics and flare ups: what do they mean?
Hello, I have quite a specific question related to biologics and wondered if anyone might have experience / knowledge. I finally started the biologic Amgevita 6 weeks ago, after getting diagnosed with RA in October 2022. No other treatments had worked for me at all. With the biologic I felt an improvement after 2 weeks.…
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Anyone using adalimumab?
Just need to vent somewhere I’m starting adalimumab injections tomorrow morning, the nurse just phone to say she will be here at 9 to help me and talk me through things . Can’t believe it’s come to this 🙁 Anyone have any advise or tips ? Sorry just needed a rant
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When it really starts to bug to you 🐛
I've had ra for 20 + years. I was diagnosed at 30. I've been lucky so far, treatment worked very well the first ten years. I've had a few very bad but shortish flares and stopped working 5 years ago. I've still been able to potter about though and do some nice things. The last few years have been a bit yucky. I've tried…
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JAK inhibitors and Tocilizumab
Anyone have any insights on JAK inhibitors or Tocilizumab? Having manage my RA successfully since 2004 and able to do a very stressful and physically demanding emergency services role, but since 2017 found my combination of DMARDs less effective and had to be enhanced with biologics with mixed results. The above suggested…
