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Benapali
Hi has anyone starting benapali have terrible tiredness and nausea.
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Help and advice with diagnosis and medication
Hi, I'm new here and wondered if I could ask for some advice and support. I am 34 years old and was diagnosed with Psoriatic arthritis and Ankylosing Spondylitis around 5 months ago and started on the biologic drug Cimzia 5 weeks ago. Although I have been advised to give it up to 6 months to really have an effect, I…
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Hi there, I'm new!
Hi there, I'm new here but have been reading up on various threads since I was first diagnosed back in October. I found the community really useful: thank you for sharing your personal experiences, it has been a real help for me. A little bit about me: I was diagnosed with PsA and psoriatic spondylitis 12 weeks ago and…
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Pain management
I recently attended my first pain management appointment. I felt like my concerns weren't being acknowledged. I have ankylosing spondylitis, but I also experience pain throughout my neck and upper back. I am currently waiting for acupuncture, a TENS machine, and new medication. I feel disappointed that my pain isn't being…
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24, Diagnosed with RA at 22. Issues with treatment
Hi all, I was diagnosed around 2 years ago and unfortunately have had a really difficult time at the Doctors and wondered if anyone shared the same issues? When I was given my diagnosis, I was told on the phone by my doctor on a call that lasted around 30 seconds. Following this I was obviously shocked and had lots of…
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Advice on Axial Spondyloarthritis
Hi, just wondering whether I put up with this pain or I need to see my GP or Rheumatologist. My rib cage is very painful when I breath in - so can only do shallow breathing. I know this is part of AxSpA but any recommendations on how to stop the pain would be really apprieciated. I am on biologic injections but just lately…
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Biologics
hi after starting on biologics in august I appreciate it is still early days but did think I would feel some relief by now. I am so tired of this pain. Can anyone give my some positivity something to hope for please
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My sons diagnosis
hello! I’m new to this so this is my first post. my son a year ago had a problem with his foot and was unable to walk on one foot, he was 18 at the time and he still cannot walk with his heel down just leans on his toes. He then had uveitis in his eye. Then his pelvis was hurting, then his elbow bent! After a year of drs,…
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Struggling with biosimilars
Hey, I’ve been on Idacio for a few months after delaying due to Covid. I do the injections myself, but every time I’m really struggling more and more. So much so that I couldn’t bring my self to do it today 🤦🏼♀️😣 I keep telling myself it’s a positive and it will help me… but I just can’t help get anxious and stressed then…
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Sensory Neural Hearing Lose Left Ear told today
Hi Already got OA and Early Glaucoma and Barratts Osophagus (severe Gerd Stomach Osophagus). Today told Covid Booster last week caused this permanent severe hearing loss One Ear can cause Balance issues. Any advice eg a Versus type Def organisation.How to investigate hearing aids.Poor financially live Scotland so should…
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Anyone using adalimumab?
Just need to vent somewhere I’m starting adalimumab injections tomorrow morning, the nurse just phone to say she will be here at 9 to help me and talk me through things . Can’t believe it’s come to this 🙁 Anyone have any advise or tips ? Sorry just needed a rant
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Struggling
Hi, I'm new to this site and forum, not new to arthritis unfortunately. I was diagnosed with ulcerative colitis 30 years ago and have had surgery for this resulting in a permanent Ileostomy. UC though does not just affect the colon it can also cause joint problems too. I was diagnosed with UC related inflammatory arthritis…
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Bio similar help
I’ve not long started Bio similar treatment for Spondyloarthritis. I wondered if there’s anyone else on this kind of treatment that can reassure me. I’ve started to get quite anxious at times, especially at night, worrying about all sorts of things and am finding it hard to switch off and just relax. I’m not sure who to…
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“My best therapy is helping other people”
Pete Ludbrook is 68 and he first experienced symptoms in his late teens. He was eventually diagnosed with ankylosing spondylitis (AS) and associated Crohn’s disease. Here he shares his story.
