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ESA Tribunal Appeal Help & Advice.
Hi I'm new here. I've been suffering with my arthritis following a severe flare up in the Autumn of 2023 which sent my inflammation markers into extremely high levels and I was in extreme pain and had limited mobility as a result. A change of medication to a monthly IV infusions of Tocilizumab has sorted out my…
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Should I take hydroxychloroquine for palindromic arthritis?
Hi all, I was recently diagnosed with Palindromic arthritis afte 2 years of symptoms. I currently have a really bad flare up in my right hand. I was prescribed hydroxychloroquine but only "if it gets worse". I am not sure what that means - a single flare? or over several years? I was only given 1 month's supply. My GP…
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Psoriatic arthritis progression? What to do?
Hello everyone! After a long time in pain I was diagnosed with psoriatic arthritis in June last year, had steroid injection in my hip and started on methotrexate. MRI at that point was showing inflammation in hips (right was the main problem) other findings were inconclusive. I was hopeful and really wanted to regain…
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The 3am club - Rheumatoid Arthritis
anyone else having the joy of being woken up in the night with severe pain from flare ups? I only got diagnosed in may-24 and the middle of the night flares are horrific! Hot water bottle and co-codamol are the only things that dull it.
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Help and advice with diagnosis and medication
Hi, I'm new here and wondered if I could ask for some advice and support. I am 34 years old and was diagnosed with Psoriatic arthritis and Ankylosing Spondylitis around 5 months ago and started on the biologic drug Cimzia 5 weeks ago. Although I have been advised to give it up to 6 months to really have an effect, I…
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Flare-up symptoms
Hi there, I was diagnosed back in October and I’m still trying to understand all the ins and outs of my condition, seronegative PsA and psoriatic spondylitis. especially flareups I’m unsure what they look like or should look like. I understand they are different for everybody. I’m in the middle of a flareup now and was…
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Recent massive flare up
I have had OA for a long while and had a TKR on left. I use a wheelchair, as so many years using crutches has meant using crutches causes pain in hands & shoulders. This year I had a flare up of pain, stiffness, and weakness in my hands, wrists, and shoulders that was brutal. I couldn't even pull a bedsheet up during the 6…
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Post op rheumatoid flare relief
Help me please! I am 12 days post op of a c1/c2 neck fusion. The neck is healing fine and causing me no problems. But my arthritis flares are reducing me to tears. I've been told to stay off all my drugs, including anti imflamatories and steroids. He said if absolutely necessary I can have one antiimflammatory, but it's…
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Help coping with a knee flare
Hi all I was diagnosed with JIA at 18months old, which transitioned into rheumatoid arthritis I'm now 36 and really struggling with a right knee flare, in alot of discomfort, limited movement in that knee. I have a guided ultrasound cortisone injection boomed for 29th May which I've been waiting months for. My emotions are…
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Advice dealing with RA knee flare
Hi all I was diagnosed with JIA at 18months old, which transitioned into rheumatoid arthritis I'm not 36 and really struggling with a right knee flare, in alot of discomfort, limited movement in that knee. I have a guided ultrasound cortisone injection boomed for 29th May which I've been waiting months for. My emotions are…
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Biologics and flare ups: what do they mean?
Hello, I have quite a specific question related to biologics and wondered if anyone might have experience / knowledge. I finally started the biologic Amgevita 6 weeks ago, after getting diagnosed with RA in October 2022. No other treatments had worked for me at all. With the biologic I felt an improvement after 2 weeks.…
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Covid endless variants and RA immune suppression
This is a concerning article from the journal Nature: Just when I thought it was safe to go back out… For our community having multiple jabs each with the potential to trigger a flare up is already unwelcome. We really need vaccination against the parts that don’t mutate so much. Has anyone heard of any progress in this…
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Kevzara side effects
Hi, I just started my 4th biologic with is kevzara, I was told that the common side effects were cold symptoms and congestion. I did my injection 3 days ago and woke up with these symptoms today..if anyone has had them do they do away in a few days and comeback with the next injection or are these side affects always there…
