Seven days
LignumVitae
Member Posts: 1,972
Seven days - that is all I have to wait for an appointment to see my consultant. Following a fortnight off the meth due to a stomach bug at the start of May things have been on the slide. Like King Canute I did everything I could to deny the tide and like King Canute I am now thoroughly drowning (except I think he just got wet feet).
I went to get a steroid jab yesterday to calm a horrendous flare but due to an impressive reaction to an insect bite I couldn't have one. We decided that the best thing to do was to try and hang on and see my consultant at my very worst with a view to reviewing my meds. I feel awful and I feel very alone. I am in a state of near constant anxiety (so not me) about not letting everybody down. Logically I know the girls probably don't even notice things are different (except we are spending lots of time sitting on the floor learning to roll a ball). When did logic mess with how a flare felt though? I'm a ball of inflammation and I'm so tired. I have really good support around me but that doesn't penetrate those feelings of OH NO, PLEASE NO.
Why does arthritis even exist? When does it stop pestering for a fight? I just need to get through these seven days and then hopefully help will be on hand. I don't know when I will get back to this post. I just needed to acknowledge to myself all that turmoil and loneliness that goes on along with the pain, inflammation, stiffness, tiredness etc.
LV is down but she refuses to be out, she just needs to work out how to cling on for seven more days hopefully.
Love you all lots
I went to get a steroid jab yesterday to calm a horrendous flare but due to an impressive reaction to an insect bite I couldn't have one. We decided that the best thing to do was to try and hang on and see my consultant at my very worst with a view to reviewing my meds. I feel awful and I feel very alone. I am in a state of near constant anxiety (so not me) about not letting everybody down. Logically I know the girls probably don't even notice things are different (except we are spending lots of time sitting on the floor learning to roll a ball). When did logic mess with how a flare felt though? I'm a ball of inflammation and I'm so tired. I have really good support around me but that doesn't penetrate those feelings of OH NO, PLEASE NO.
Why does arthritis even exist? When does it stop pestering for a fight? I just need to get through these seven days and then hopefully help will be on hand. I don't know when I will get back to this post. I just needed to acknowledge to myself all that turmoil and loneliness that goes on along with the pain, inflammation, stiffness, tiredness etc.
LV is down but she refuses to be out, she just needs to work out how to cling on for seven more days hopefully.
Love you all lots
Hey little fighter, things will get brighter
0
Comments
-
Mega hugs coming your way,keep on fighting it .(((()))) Mig0
-
Keep strong, seven days will come round quick and I hope things then get sorted for youHe did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
Julian of Norwich0 -
OK let's start with a few of these (((()))). This is not the real LV. She's in there, with her irrepressible sense of humour and logic and determination but, right now, that evil parasite Arthritis has taken its opportunity to gain the upper hand over the body they share.
I so understand theLignumVitae wrote:Why does arthritis even exist? When does it stop pestering for a fight? I just need to get through these seven days and then hopefully help will be on hand. I don't know when I will get back to this post. I just needed to acknowledge to myself all that turmoil and loneliness that goes on along with the pain, inflammation, stiffness, tiredness etc.
You are not alone. We are here with you. We'll do the countdown with you. And the two little LV Juniors will be blissfully unaware of anything wrong.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hello LV,
I liked the bit about your girls.
And also the way that you soldier on.0 -
My heart goes out to you LV.
You will get through this, because you have to :?
As my dad used to say, seven days? That's barely a week!
Take care ((((()))))
Numpty0 -
Oh lovey I do feel for you, and know this is so out of character..I have never heard you moan, so talking in itself will hopefully help if only a little.
You are such a good mum to your lovely twins , please make more use of the help, if only till you get some relief,it must be so hard trying to carry on through the pain,I really wish I could come and give you a proper hug, but please don't forget we are all here..please let us know how you are getting on from time to time...(((())) xxLove
Barbara0 -
Oh dear LV I cant imagine what you must be feeling like right now, so for a starter have some of these ((((())))) You will get through this because of who you are, you got though your pregnancy with all that was flung at you and you will get through this as well and we will all be there helping you all the way. Here are some (((()))) for the girls till mummy feels a bit better. Hang in there LV count down has started..................lots of love........................Marie xxxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
Just popping in with some more hugs..and thinking about you (((()))) xxLove
Barbara0 -
Thank you everybody. I'm crying now you lovely bunch.
Less than 7 days to go. Thank you, your kind words, hugs and support mean so much xxHey little fighter, things will get brighter0 -
We are always here LV,so you carry on talking to us lot.. not long like you say..xxLove
Barbara0 -
We'll be crossing off the days with you LV. So sorry you are in such a bad way, and I do hope that the appointment will provide some solutions.It's not how you would choose but presenting with full blown symptoms is probably no bad thing in terms of getting something done.0
-
This is the grim reality of motherhood plus Life with Arthritis and it's far from fun. Look at your little girls - they are partly why you are enduring this and I am sure they are worth this virulent 'payback'. Arthritis does not appreciate being ignored or squashed, yours is reminding you that it's still around and will do what it will but you are the stronger, believe you me. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
-
1 down / 6 to go.
Well done on getting through yesterday and on calling for help. I know you're an independent spirit and it won't have been easy, especially with that pain in the neck (and everywhere else) arthritis telling you you were a wimp for giving in. (a)You're not (b)Calling for help is not giving in it's ensuring you don't and (c) It's only a disease. Like Manuel (Fawlty Towers) it knows nothing. Keep going, LV. You're doing great.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Just want to echo what Sticky and others are saying. You got through yesterday so one day less to go.
We're all here supporting you.He did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
Julian of Norwich0 -
One day nearer LV, hang in there keep thinking less than a week to go ((((())))) xxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
Hello LV..like the others have said you are a strong person , it cant be easy bringing up the twins with arthritis..but you have and are doing a brilliant job,now you need some help with the pain..one less day... xxLove
Barbara0 -
I can't thank you all enough. You are all very very amazing. Well that's now six days and day six is nearly done. I've managed to do nothing in style today. My friend came around this morning and she is one of the girls' favourite people largely because she plays with them so much. She was twizzing and legging and winging will I sat on the rug with which ever girl was having a moment at being still. Then we went out for lunch with my mum so I had to sit and eat. Mr LV was home early so we went out to a lovely little cafe and drank hot chocolate by the canal. I think you all gave me the ability to keep going and the perspective on how to make the best of it all...so thank you again. These days are dropping g like bowling pins (but not if I've been bowling) thank you all so much. Love LV xxHey little fighter, things will get brighter0
-
Big hugs, keep strong! Not much longer to go.0
-
2 down / 5 to go
Doing nothing in style – or even out of style – is exactly what's required though, when flaring badly, even going out to a restaurant or cafe can seem like climbing a mountain. The emotions have to be cared for though as well as the joints and a change of scenery, especially if pleasant, does help so go for it as and when you can.
I confess I did a double-take when I read 'drank hot chocolate by the....' I was, for some reason, expecting 'bucketful' or something of the kind and was briefly left wondering what a canal-load of hot chocolate would look likeIf at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Sounds as though yesterday was a much needed tonic. Like the idea of doing nothing in style and hope you manage some more of it. Another day over, another day nearer.He did not say you will not be storm tossed, you will not be sore distressed, you will not be work weary. He said you will not be overcome.
Julian of Norwich0 -
Getting nearer, hang in there LV, sending a top up of these (((()))) xxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
5 days LV...we are with you all the way...wishing you well with everything..(((()))) xxLove
Barbara0 -
Thank you so much everybody for keeping me in your thoughts. You are really helping me get through this. Today has been a hard day after a bad night but it's one more gone and one less to endure. I just really hope my consultant can help me - yes I'm now having the fear that they won't be able to do anything! It's all part of the arthritis flare fear isn't it?! What fun.
Thank you again, you don't know how much you are helping. As for canals of hot chocolate... Yes pleaseHey little fighter, things will get brighter0 -
Hugs (((()))) mig0
-
Hoping tonight is a better night, and tomorrow a better day.
((((()))))
Keep on keeping on,
Numpty0
Categories
- All Categories
- 12.3K Our Community
- 9.7K Living with arthritis
- 782 Chat to our Helpline Team
- 411 Coffee Lounge
- 26 Food and Diet
- 225 Work and financial support
- 6 Want to Get Involved?
- 175 Hints and Tips
- 402 Young people's community
- 12 Parents of Child with Arthritis
- 38 My Triumphs
- 129 Let's Move
- 33 Sports and Hobbies
- 245 Coronavirus (COVID-19)
- 21 How to use your online community
- 37 Community Feedback and ideas