cafe

trisher

Hi Everyone

Sorry don't know who is here and who is not.
Would love a coffee and a sticky bun witha cherry on the top

I hope everyone is okish today.

Trish xxx

snowball

Jan I do hope you get some sleep tonight. I is so hot thought the rain would cool it down :roll:

Julie xx

trisher

Hi Julie

I am here. Is Val and Annie in yet?

How are you? You don't seem to be having a very good day today. A (((((())))) for you.

Jan

You neither and last night we were all up. Then I was up in the night again. I think that might have been because I had a hossy appointment. A ((((())))) for you too.

The good news is I was not kidnapped.

Trish xx

annie_mial

Hi Trish, Jan, Julie, Cris, Whoever I've forgotten..............

Weather better than expected today, turned into a lovely day, but clouded over again now. The apple tree is being taken down on Thursday, so have spent the afternoon outside moving things to make room.

Had fish and chips out today - delish. Going to try every place in town and then choose a favourite, or maybe two.

I'm ready for a builders and some apple pie and cream.....lots of cream!

Annie

snowball

Hi Trish how are you today :?: just getting your drink and bun.

Julie xx

barbara12

Hi trish annie julie jan wonky cris....sorry if I have missed anyone
trish it is lovely to see you back...we have a store of buns with cherrys on just for you...hope you are feeling a bit better
annie I really envy you fish and chips always taste better at the seaside......

snowball

Jan there you go hun strong cup of tea barbara, Annie and Trish I've you a drink too.
Trish I'm flaring up all the time and not getting on with meds for my bp but I have got some different ones today so we will see how it goes.

Julie xx

barbara12

thanks julie...you poor thing...I do hope you get some sleep tonight...I hope the new meds work...fingers crossed..

trisher

Hi Julie

Well I'm a little bit down over my hossy appointment today.

I cannot remember what it was called but it is a test they do on the liver which everyone has in the liver.

Well this is what is wrong a normal persons liver for the test they do is a score of 50.

Mine is higher, it has dipped but it has been on the rise since before I was ill last week.

The last two readings for me is 1,050. They could not increase my meds to try and make me feel better arthur wise.

The doctor has always been more than pleased to give me a Medrone injection as I'm still on a low start dose of the meds.

Today they said the will not give me one as they do not know if that is making my liver go wrong.

I have to go back again. They have told me and hubby to look out for any yellowing of the skin also the eyes.

If I do even go slightly yellow I have got to ring them straight away. Or go to Casualty.

I do feel rock bottom at the moment. I'm fed up with everything. Why can't something go right for a change?

I'm getting worse with arthur all over me.

I'm sick of my life, why can't I be normal for a change. Why or what has gone wrong to make it shoot from 50 to 1,050.

They said they repeated the test and it is the same. They repeated it today and we had to wait and it was still the same. They told me it is so high.

While I'm like this I cannot change meds just take the low dose of Cyclosporin. I may have to come off this as well.

Trish

valval

trish my mate not suprised you are down that awfull and not sure what to say to make things better and with arther playing up you must feel awfull so sending you my pal


to keep you company and sending loads of hugs

barbara12

trisher wrote:

Hi Julie

Well I'm a little bit down over my hossy appointment today.

I cannot remember what it was called but it is a test they do on the liver which everyone has in the liver.

Well this is what is wrong a normal persons liver for the test they do is a score of 50.

Mine is higher, it has dipped but it has been on the rise since before I was ill last week.

The last two readings for me is 1,050. They could not increase my meds to try and make me feel better arthur wise.trish what I would give to be able to help.....you really deserve some relief...hopefully it will be on its way ....
Barbara xx

The doctor has always been more than pleased to give me a Medrone injection as I'm still on a low start dose of the meds.

Today they said the will not give me one as they do not know if that is making my liver go wrong.

I have to go back again. They have told me and hubby to look out for any yellowing of the skin also the eyes.

If I do even go slightly yellow I have got to ring them straight away. Or go to Casualty.

I do feel rock bottom at the moment. I'm fed up with everything. Why can't something go right for a change?

I'm getting worse with arthur all over me.

I'm sick of my life, why can't I be normal for a change. Why or what has gone wrong to make it shoot from 50 to 1,050.

They said they repeated the test and it is the same. They repeated it today and we had to wait and it was still the same. They told me it is so high.

While I'm like this I cannot change meds just take the low dose of Cyclosporin. I may have to come off this as well.

Trish

barbara12

sorry about that trish it all went wrong
just want to say I wish I could help...and that you get some relief very soon you really deserve it
Love
Barbara xx

snowball

Trish I'm so sorry you don't deserve that, hope you are feeling better soon ((((((hugs)))))) to you.

Love Julie xx

trisher

Thanks Val Barbara

I just don't know what to say or do anymore.

I suppose so much goes wrong for me. Today is the last straw. I wish I could remember what they called the test.

If only I had not been ill last week I would have seen the liver Consultant. I have an appointment next weel to see them now.

Sorry I should not rant, you are all having problems.

Val thanks for sending me Dollop

Love Trish xxxx

barbara12

trish you never rant...it will do you good to get it out...there you go we will have a chat and a drink....

snowball

Trish you rant all you want my love, I do hope it goes well next week when you see the consultant.

Julie xx

valval

trisher wrote:

Thanks Val Barbara

I just don't know what to say or do anymore.

I suppose so much goes wrong for me. Today is the last straw. I wish I could remember what they called the test.

If only I had not been ill last week I would have seen the liver Consultant. I have an appointment next weel to see them now.

Sorry I should not rant, you are all having problems.

Val thanks for sending me Dollop

Love Trish xxxx

you moan all you want you do it least of all and we know you are going through so much we just wish we were close enough to come and help you i am sure they will help you next week at app. then things will start to get better we are hear for you when ever you need us val

annie_mial

Hi Trish my lovely, sorry it's all gone bottoms up..........I got you a big stick of rock with 'arther' written all the way through, so you can bite him back any time.

I bought some soft rock.......norty, norty, hubby will ration it out to me.

A gnome followed me home, too...........I didn't really want him, but after we got back I found him out in the garden.

Annie

Wonkylegs

HI Trisher I am glad you were not hossie-knapped, but am really sorry to read about your liver test.

I can hazard a guess it is the ALT test that is part of the full blood count that they usually do for me - that has a top of about 45 - 50 and I know mine was up a bit last time but nothing like yours :shock: golly I bet next week feels a long way off right now.

Try to be kind to yourself and not to worry too much.
we're here for you whenever you need us, and please rant away because you need to let it out and Bill can't hear it all the time can he?

loads of wonky hugs & a few slurps from littlelegs too
WOnky xxx

mummyb

Dear Trish, what an awful day you've had, so much worry on top of everything else. Its hard to feel positive when all ths c--p is going on, so we'll all have to try to be positive for you. As for venting your feelings, well this is jut the place to do it, remember all the comfort and reassurance you have offered everyone else, well now its you turn to be comforted and reassured by all of us. If only we could really pop in and give you a hug to cheer you up, but then again you'd need a massive house to fit us all in! We'll all have our fingers and toes crossed for your appointment next week. Lots of love and healing hugs ((((((((((())))))))))) for you, take care, Trish, lets hope better times are just around the corner, love Brenda xx

trisher

Hi Brenda

You had a bad night didn't you? I did see you up and I went to find NightOwls for you so you could see I was awake too.

I missed you I think. I hope you feel a bit better today Brenda.

I do hope I help some people I try to but never really know for sure.

Thank you for you nice words and wishes.

Love Trish xxxx

snowball

Hi Brenda how are :?: have you been to work today.

Juliexx

valval

trisher wrote:

Hi Brenda

You had a bad night didn't you? I did see you up and I went to find NightOwls for you so you could see I was awake too.

I missed you I think. I hope you feel a bit better today Brenda.

I do hope I help some people I try to but never really know for sure.

Thank you for you nice words and wishes.

Love Trish xxxx

well you help me and a friend of mine told me you lightened there day today made them smile and no one can do more than that val

snowball

Trisher Brenda is right you have helped me so much, and we want to help you I wish we lived closer and I could give you a real hug.

Julie xx

trisher

Julie

I just feel so down tonight. Really deflated. Every drug they try I react against.
The drug I'm on Cyclosporin, well it is supposed to be good to the liver but attacks the kidneys.

The worst part of all is my hubby is with me and he hears all this. Years ago I used to be able to go by myself so when I got home I would just say I'm ok.

I know this hurts him so much. I wish I could still go on my own.

Last week, he was worried sick when I was rushed into the hossy.

This week well, you know what I mean.