Sad time for me

1…1012141516

Comments

  • salamander
    salamander Member Posts: 1,906
    edited 30. Nov -1, 00:00
    Hi Linda, glad you'll be getting anti tnfs. I hope they work really well for you.
    xx
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    Thanks, I'm just waiting for the phone call for delivery ............at least I think that's the next step. :grin:
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Legs
    I really do wish you well with the treatment...and knowing you I am sure it will be Elizabeth gang...xx
    Love
    Barbara
  • woodbon
    woodbon Member Posts: 4,969
    edited 30. Nov -1, 00:00
    Hi Linda, I'm pleased your going to get the full treatment. I hope it soon begins to help you. I can guess how much you need it. Thinking of you, take care, Love Sue xxxx (((()))))
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    Thanks both :grin:

    I'll let you know when I'm poised for the first injection :shock:

    Then it's just runny tummy to sort and I've had a letter for a routine breast scan ................oh and a check-up at the dentist.

    So it's jabs, boobs, bottoms and finally my mouth for the full MOT ..........I reckon a deserve a certificate at the end of it all 8)

    Love,
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Linda

    Full MOT i see...
    Lets hope it goes well..
    Noticed you going on anti tfs too , so fingers crossed all goes well luvie..
    I am sure i can magic up a certificate if you pass with flying colours .. :lol:

    Let us know how you get on..xxxx
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Dear Linda

    You are going to be kept busy, sometimes the best way to be. I hope you are ok, in other ways too. :smile:

    Thinking of you, :smile:

    Love
    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • frogmorton
    frogmorton Member Posts: 30,026
    edited 30. Nov -1, 00:00
    Hi legs

    that does sound like a full MOT doesn't it?!!

    all you need now is a full petrol tank and you will be good to go!!

    Well done
    Love

    toni xx
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    I reckon a deserve a certificate at the end of it all

    Legs, you should have been certified long ago. That's why we love you.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    stickywicket wrote:
    lindalegs wrote:
    I reckon a deserve a certificate at the end of it all

    Legs, you should have been certified long ago.


    What makes you think I wasn't??????????????? :wink:

    Luv,
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    There's usually a bit of a delay. I didn't take too much notice, just did as I was told! First was lung function and breathing and TB checks, then final approval that the anti-tnf would be paid for and then a letter with an appointment with a nurse to go through the do's and don'ts in the comfort of your home. There was quite a wait between each stage.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    stickywicket wrote:
    lindalegs wrote:
    I reckon a deserve a certificate at the end of it all

    Legs, you should have been certified long ago.


    What makes you think I wasn't??????????????? :wink:

    Ah, that explains a lot.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    tkachev wrote:
    There's usually a bit of a delay. I didn't take too much notice, just did as I was told! First was lung function and breathing and TB checks, then final approval that the anti-tnf would be paid for and then a letter with an appointment with a nurse to go through the do's and don'ts in the comfort of your home. There was quite a wait between each stage.

    Elizabeth


    Hi E,

    I've had chest x-ray, was inoculated against TB when I was a teenager and bloods which are all okay.

    Last Friday was the approval meeting after my Rheumy referred me for the treatment. Within the next two weeks I'll get a phone call from the delivery company and then the nurse will come to train me in self injection.

    So it's only just over 4 weeks since I was first recommended for the treatment, which, I think, is pretty good.

    Hope you're ok today.

    Luv,
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    tkachev wrote:
    There's usually a bit of a delay. I didn't take too much notice, just did as I was told! First was lung function and breathing and TB checks, then final approval that the anti-tnf would be paid for and then a letter with an appointment with a nurse to go through the do's and don'ts in the comfort of your home. There was quite a wait between each stage.

    Elizabeth


    Hi E,

    I've had chest x-ray, was inoculated against TB when I was a teenager and bloods which are all okay.

    Last Friday was the approval meeting after my Rheumy referred me for the treatment. Within the next two weeks I'll get a phone call from the delivery company and then the nurse will come to train me in self injection.

    So it's only just over 4 weeks since I was first recommended for the treatment, which, I think, is pretty good.

    Hope you're ok today.

    Luv,

    You are thankfully further on than I thought. 4 weeks is very fast, mine was at least 3 months.
    The nurse was great and offered to visit to do any further injections if I wanted.

    I'm a bit chesty and hoping it is the weather otherwise it is the asthma!

    E x
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    (Hope your chest has cleared up Elizabeth.)

    I had a phone call on Friday and the 1st delivery of Etanercept is being delivered on Wednesday morning then a nurse will ring me within 2 working days to arrange coming and showing me how to self-inject.

    It's all happening now. I don't know whether to be scared or excited :shock: :roll:
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Be excited, Legs. It's more fun and it's more you. And good luck!
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    lindalegs wrote:
    (Hope your chest has cleared up Elizabeth.)

    I had a phone call on Friday and the 1st delivery of Etanercept is being delivered on Wednesday morning then a nurse will ring me within 2 working days to arrange coming and showing me how to self-inject.

    It's all happening now. I don't know whether to be scared or excited :shock: :roll:


    do not be scared we will all be with you and you know what fun that is lol
    val
  • SheilaD
    SheilaD Member Posts: 201
    edited 30. Nov -1, 00:00
    So Sorry for your bad news lots of love n hugs coming your way xxx
    SheilaD
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Hello legs, I am sorry for the silence but I was away last week and have come back to household chaos and a general 'bleugh' feeling. Grrrr.

    I wish you the very best with the enbrel, it's a doddle to do and let's hope it does the trick, yes? My fingers are crossed (which makes typing flaming tricky!) DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • ironic
    ironic Member Posts: 2,361
    edited 30. Nov -1, 00:00
    Hi Linda,
    Good news that things are moving a pace for you and fingers crossed the nurse will be calling to see you Friday/Monday??
    I hope she can reassure you and boost your confidence back up. All well and good agreeing to it but as the day draws nearer you are bound to feel a bit wobbly.

    I will be thinking of you,

    Lv, I x
  • tkachev
    tkachev Member Posts: 8,332
    edited 30. Nov -1, 00:00
    I chose adalimumab (Humira) because I preferred a jab every 2 weeks in preference to weekly. They advise you to take it on the same day each week/fortnight but I'm not that organised!
    Linda my chest is bad, it seems to be the price you pay for the above but rather that than the awful pain.

    Good luck with it Linda, I so hope it helps. You can twitter away on LWA and I shall follow your updates.

    Elizabeth
    Never be bullied into silence.
    Never allow yourself to be made a victim.
    Accept no ones definition of your life

    Define yourself........

    Harvey Fierstein
  • lindalegs
    lindalegs Member Posts: 5,398
    edited 30. Nov -1, 00:00
    URGENT ADVISE NEEDED NOW!!!

    I'm expecting the delivery tomorrow as stated.

    My dilemma is:
      My bowels aren't sorted and have had emergency referral to hospital sent yesterday. Yesterday I was laid up in bed with headache and vomiting dark green bile and I couldn't even keep a sip of water down till 10:00 pm. Had a phone consultation with doc this morning and am much better.

    Would you accept the delivery on the chance that I may be considered not well enough to take it and all that money will be wasted or do I just go for it take it in and see what the nurse says when she comes???????????

    I really don't want to miss this chance if I can help it.

    What would you do?

    PS Your chest is a prize s@d isn't it 'E'
    PPS Hello SheilaD, I don't think we've talked before
    PPPS Hi to all the old faithfuls who are always there a010.gif
    Love, Legs x
    'Make a life out of what you have, not what you're missing'
  • traluvie
    traluvie Member Posts: 2,579
    edited 30. Nov -1, 00:00
    Hi Linda,

    Still in the wars, bless you..

    I would take the delivery and then see what nurse says when she comes..There is no harm with taking the delivery as that is all you are doing, nurse will decide whats best when she comes and maybe even come a bit later so you can feel better, you could always ring and ask luvie, see what she says..

    You will get there my dear,, we are all here to help you..


    xxxxx(((((X)))))xxxxx
    th_tn_TisFORTIGGER.jpgxxTracyxx
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Hi legs

    I am sorry that you still are having a rough time. :sad:

    I agree with tracy, I would accept the delivery and let the nurse decide tomorrow whether you are fit enough.

    I have my fingers crossed for you
    Love & Hugs (((((((((()))))) juliepf x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Accept it so you can store it for the time that you are better. In my experience it's best not to mess up these kinds of arrangements, let the delivery happen as is meant, then when they contact you to arrange the next delivery that can be organised based on how many injections you have left. Healthcare at Home deal with my H and they always ask, when they ring to confirm a delivery, how much I have left. Dates can then be adjusted if necessary. Good luck and I hope you feel much better soon. Can you ring the nurse and have a chat with her? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben

Categories