Sad time for me

liesa

Hi Linda, get yourself some 'colpermin' thnk thats how its spelt, i had IBS for many years couldnt go anywhere unless i knew exactly where an open loo was.. in our town they seem to have closed may of them down and turned them into 'flower shops' hairdressers' but after having colpermin
http://www.ibs-symptoms.co.uk/ its brilliant, i do have days of IBS but theyre few and far between,
please get some try it they will help,
your dear dad, bless him these days/weeks are so important for you for all of you, i think people act in so many different ways when my dear father in law passed away he was in intensive care, my '''sister in law''' punched me... have never spoken to her since and we hated her before...
your dad is the most important person here and its important he doesnt feel the bad vibes from any of you, i dont know if this is the start of slipping away but remember they do say people that are sleeping in this way can hear...
hugs for you, wish we could do more sending you much love xxxx

elnafinn

liesa wrote:

your dad is the most important person here and its important he doesnt feel the bad vibes from any of you, i dont know if this is the start of slipping away but remember they do say people that are sleeping in this way can hear...
hugs for you, wish we could do more sending you much love xxxx

Dear Linda

I agree with Liesa, your dad is the most important person at the moment and although your dad may be asleep much of the time now because of the drugs to keep him comfortable, there is every possibility he can hear and also feel, so do stroke his arm or hold his hand because touch can be more important than words sometimes.

I do hope that you will be able to dose yourself up so as to be able to get to see your dad.

Love
Elna x

magenta

Hi Linda,

I'm so sorry to hear how ill you've been lately. I know you're Dad will be comfortable so now you have to get strong.
Please look after yourself,

Thinking of you all,

Eileen xxx

lindalegs

Thank you all for your replies and support once again.

My Dad can't hear very well as the tumour is around his ear and has gone down into his breastbone and lungs. His voice is affected too and is quite weak. The reason he falls is because of the balance 'gland/thing' is in his ear and it's interfering with that too.

The family don't argue around him but squabble on the phone so I'm sure he's unaware of what's happening. Thank goodness. :roll: Yesterday they calmed down, because, I think, everyone's realising how short Dad's time is now.

I'm using Loperamide from the doc twice a day for my runny tummy but it just seems not to be working at the moment. (Thanks for the website Leisa.) I shall wait till I see the doctor on Wednesday for the results of my tests before I talk to her about other drugs. I have to do something as I'm losing weight ........I was a healthy 10 stone and am now nearly 9 :shock: :shock:

I'm off to bed now as keep going to the loo makes me very tired.

Take care all.

Love

elnafinn

Dear Linda

On my packet of Lopermide from the gp, 2 mg caps it says do not take more than 8 of these in any 24 hour period, so you can take more than 2 a day, if 2 are not working for you. I never lost that much weight, only about 4 lbs. You have lost a lot of weight.

Thinking of you, I hope you sleep well,

Love
Elna x

skezier

hi Legs,

flower i am sorry its so bad for you just now. i am sure that the squabbling will calm down and also hope that the doc can help you as well.

ring them maybe and ask can you take 4 at a time..... its what i have and i am fairly sure its the same drug. i had some other stuff to have 3x a day as well but the name of it has long gone but the 4 twice a day did slow and then stop the last crohn's kick up.

really hope you will be ok and so sorry about your Dad Legs. love and a ((((((((((( ))))))))))) cris xxx

stickywicket

Legs, don't lose sight of your own needs in all this. Your body's trying to tell you something. The timing sucks but it can't be helped. Go easy on yourself. I'm sure that's what your Dad would want. I'm thinking of you.

julie47

Hi Legs I am sorry to read your updates on your dads health. I am also so very sorry that all this stress, especially of your family bickering at a time like this is causing you health problems.
I am pleased your dad is unaware of the family bickering and just glad they do it away from him.
I hope the meds that your doc have given you, help to ease the tummy so that you can get to visit your dad soon.
Take care of yourself.
Love & hugs Juliepf x

dreamdaisy

I am thinking of you. ((())) DD

tjt6768

Hi hun.. I am so sorry that things are so bad for you.. Only thing I can offer is hugs from me and Ra..
As already said, the loperamide 2mg can be 8 in 24hrs. I am taking them as well as the lanzoprazole, peppermint oil and anti-spazmodics alverine..

((((()))))

lindalegs

After reading your messages I rang the doctors because I was only on 1 x 2mg Loperamide twice daily and they've just phoned me back to say that I can double the dose as long as it's spaced out.

I hope this brings me under control again.

Without your advice I wouldn't have even thought to question the dosage so thank you once again.

Love,

tjt6768

Good luck hun.. For me loperamide has been a big help recently :oops:

dachshund

Hi Lindalegs.
i'm sorry you have so many problems please take care and rest when you can.
((((((((lindalegs))))))))
joan xx

elnafinn

Dear Linda

Isn't this forum wonderful? So pleased that you mentioned the Lopermide dosage you were taking daily, for us to be able to help you with that. So relieved too that you called your gp to check and you have been given the go ahead to up your daily dosage.

I think that you will find that this will be of great help to tide you over until such time as you get to see a gastro.

You really do not need this to worry about at the moment, dear Linda, so it was good you mentioned it to us. You also need to eat to keep your strength up during this very difficult time for you.

Love
Elna x

theresa4

Hi Linda
Just checking in to say HI and am thinking of you, do look after yourself as well.
SEnding love and Hugs

Theresa
(((())))

skezier

Hi Legs,

just dropping you in a (((((((((( ))))))))))and a hope. Cris xxx

ironic

Hi Linda,
I just wanted to say that I am thinking of you and I hope the increase in meds has started to help with your tummy.
This is such a stressful time for you all and it is not surprising that you are even more run down. So as others have said you must take time out for yourself.

I do hope your appointment tomorrow is helpful. The weight loss is a worry for you I know. Linda I am so sorry that you are having to face all this but sadly there is no good time for these things to happen.

Sending you many gentle hugs and warmest thoughts to all of you.

Lv, I x

dachshund

Hi Linda.
good luck for tomorrow i hope everything goes well.
take care.
joan xx

stickywicket

Morning Legs. Just stopping by to say I hope things are as good as they can be. Thinking of you.

dreamdaisy

I hope you are feeling better in yourself, legs, I really do. DD

skezier

hi Legs,

i really hope they have helped you and leaving a ((((( ))))) and a hope my friend. Cris xxx

lindalegs

I had a phone call very late last night to say that Dad was now unconscious. The doctor said it was only going to be a matter of hours as he was no longer taking anything in orally. Dad is still with us today.

This morning my doctor has changed my medication and put me on codeine. As I don’t know if this will control my bowels I can’t go to see Dad, even today. I feel so utterly useless and frustrated as the earliest I can go is tomorrow morning and by then it will probably be too late.

Then it struck me that they said he can still hear so I’ve just phoned my brother again and asked him to put the phone next to Dad’s ear and, at last, I’ve been able to tell him all the loving things I've always wanted to say and never could face to face and I’ve said my goodbyes to a very dear Dad.

dreamdaisy

No words, just (((((((((((()))))))))))) and love. DD

bertyboy

My thoughts and hugs are with you Linda x

stickywicket

Oh Legs, I did that with my Dad after his stroke. Not by phone (which was a cracking idea of yours) but I did get to tell a very loving-but-unemotional man that I loved him and I'd look after my Mum so he mustn't worry.

I think you've done all you possibly can and, in the weeks and months to come, that will, quite rightly, be a consolation to you.