An update on Frogmorton.

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  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
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    I'm pleased all went well and I will keep my fingers crossed on Feb 2nd. DD ((( ))) xxx
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Toni I still have everything crossed..and sending some positive vibes..Cris's specials.. :) (()) xx
    Love
    Barbara
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Hello Toni and Lucy
    I hope everything is going as it should
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
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    Hi Toni
    I hope everything is goin as well as it should be....sorry but I changed to windows 10 and lost a lot of things...passwords etc and I always get an alert in my inbox if there is an answer to any post I'm following.
    Had nothing from this thread recently...sorry

    Love
    Hileena
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Hello Toni and Lucy
    I hope everything is going as well as it can.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Hello Toni and Lucy
    I hope everything is going as well as it can you are so busy.
    ((((((((Toni and Lucy))))))))
    Cris told me to leave a note by the kettle.
    have a good weekend
    joan xx
    take care
    joan xx
  • frogmorton
    frogmorton Member Posts: 29,483
    edited 30. Nov -1, 00:00
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    Aw yes Joan I can see that would be a Cris tip!!!

    All is well this weekend.

    On Monday Lucy has an EEG then sees neurologist. He might need to wean her off the lamotrigine because I have read it can also cause avascular necrosis. She is having pain now I can tell though she isn't saying much. Paul is worried about her :(

    Hoping Charley will come over with her OH and spend some time with Lucy - maybe go to the pictures :)

    I hope your weekend is a good one too

    xxx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    I'm glad things are ok this weekend. I've got my fingers crossed that the EEG goes well and whatever happens re meds works out for the best for Lucy. She is so brave not complaining about the pain. (((hugs))) xx
    Christine
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Hello Toni
    I am sorry to hear that Lucy is in pain with her joints bless her, I can imagine her wanting to keep it form you...I really hope all is well with the test...some hugs for both of you...((())) xx
    Love
    Barbara
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
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    Hi Toni
    Aww Bless,
    She is so brave.......but I hope she confides in you a bit....I'm sure you would like to know more about her pain.
    I know Sarah never tells me things like that. She was on crutches before she told me the hospital thought she had Plantar something or other...cant spell it. Hospital diagnosed it.
    Love
    Hileena
  • frogmorton
    frogmorton Member Posts: 29,483
    edited 30. Nov -1, 00:00
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    Thanks Christine, Barbara and Hileena :)

    Off to the QE soon for EEG then neuro. Left a message with the epilepsy nurse specialist to warn the Neuro that we want to talk about the Lamotrigine. Hopefully he will have some ideas :?

    Hileena - independent kids we've brought up :roll: I hope she's still doing well? and your Mam?

    AS for the pain I intend to talk to Dr Tim and the physio next Monday :)

    We went to see Daddy's Home at the pictures last night and had a great time.

    Love

    Toni xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Will be thinking about you both, you have had such a journey..that is still going on..I have everything crossed for good results..(())xx
    Love
    Barbara
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
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    Hi Toni
    My mam is up and down...very confused most of the time then occasionally lucid. On oxygen and a drip at the moment
    Love
    to Lucy and you of course :wink:
    Love
    Hileena
  • stickywicket
    stickywicket Member Posts: 27,719
    edited 30. Nov -1, 00:00
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    I hope all went as well as possible today and will do again next Monday.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • frogmorton
    frogmorton Member Posts: 29,483
    edited 30. Nov -1, 00:00
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    Well interesting day:

    Eeg showed activity which is safely being controlled by Lucy's present level of medication.

    Lucy wants to learn to drive.

    Dr is happy for her to learn, but wants the Avascular necrosis monitored incase the lamotrigine causes it to worsen. If it does she needs to come off it.

    Hileena will understand this - once she starts to learn she won't want her meds mucked about with.

    However he is so good with her explaining AVN and what it might do to her hip (and shoulder???). He also talked her out of going trampolining!!!

    So the application process starts and we have checked we both have the same date for last tonic clonic and complex partial seizure. Both Dec 2014 so well-over 12 months ago.

    DVLA will make her complete a medical form then once that is back with them they will contact neurology who will also complete a form. So a while yet.

    Thanks Barbara, Stickywicket and Hileena. Hileena you have my sympathy ((())) She has done so well your Mam xxx

    Love

    Toni xxx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    I am so pleased Toni ..you must have been holding your breath..like you say a while yet.. but come on Lucy...bet she cant wait...I hope the AN stays controlled :):) xx
    Love
    Barbara
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    Good news that things are being controlled. Hope it's not too long before Lucy can start her driving lessons. No holding her back, is there? Although, maybe trampolining might be a bit much for now. xx
    Christine
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Hello Toni and Lucy
    I hope everything goes well you have so much going on.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • frogmorton
    frogmorton Member Posts: 29,483
    edited 30. Nov -1, 00:00
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    Thanks Barbara Joan and Christine :)

    Yep Lucy is a livewire!!

    Trampolining best avoided for now :lol:

    She can hardly wait to start driving.

    Love

    Toni xxx
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Toni and Lucy
    Lucy must be thrilled to know she can learn to drive.
    (((((((( Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • frogmorton
    frogmorton Member Posts: 29,483
    edited 30. Nov -1, 00:00
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    She is Joan :) (I hope you are feeling better?)

    Today she has had to do someone's hair and makeup, (having already produced a 'mood board'), for a photoshoot.

    They all have to do it and then someone will 'win'!

    Scary eh?

    Mind you it did look good :) Fingers crossed.

    Love

    Toni xxx
  • applerose
    applerose Member Posts: 3,621
    edited 30. Nov -1, 00:00
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    That sounds exciting. I'll keep my fingers crossed that Lucy wins. xx
    Christine
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Toni and Lucy
    i'm pleased Lucy is doing so well of course she will win she's the best. ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
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    Wow what a boost if Lucy wins..but if not there will be a next time..good luck Lucy..not that you need it..xx
    Love
    Barbara
  • dachshund
    dachshund Member Posts: 8,955
    edited 30. Nov -1, 00:00
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    Hello Toni and Lucy
    I hope everything is going as well as it can.
    ((((((((Toni and Lucy))))))))
    take care all
    joan xx
    take care
    joan xx
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