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Readers Say Hi



  • I've had RA for years now and am well, the worst thing is stiffness but hopefully the Etanercept will begin working soon. I've left another forum as I felt that it was depressing. i live well with RA and do have other health issues, Cylindrical Brochectasis, Thyroid failure and Pernicious Aememia, but worst by far is an Acute Kidney Injury caused by a medication that due to a lost blood test was found in time to prevent harm. MY injury has now become a chronic condition but there is no treatment its just stay as well as I can and do and carry on. So onwards and and I never forget the superb medical treatment I've had and how lucky I am that a young RA Registrar checked my records or without doubt I'd have died.

  • AnnaAnna Posts: 156 mod

    Hi @wildflowers and welcome to the online community,

    It’s good to hear how positive you are keeping while living with many different conditions. This community is a positive, friendly and supportive one - members feel able to share when they’re feeling low or in pain but there’s usually another member around to pick them up and encourage them. I’m sure you’ll fit in well, and have lots of useful experiences to share.

    Do have a look round the discussion forums on the right and join in whenever you want to, depending on where your interests lie.

    if you’re interesting in keeping as mobile as possible, you could also have a look at the Let’s Move programme - it suits all fitness levels, can be done seated or standing and it can really help to keep you fit, mentally and physically. I’ve had RA for over 40 years with numerous joint replacements, and I find it helps me to keep my joints flexible ( it’s also fun!)

    i look forward to hearing more from you,

    Anna : )

  • Hi I'm Emma,

    I was diagnosed with Arthritis of the neck last year and the base of my skull is damaged.

    Amitriptyline has really helped me and Codeine when it's bad but would like to get off Codeine and go back to Cannabis, C.B.D.

  • BrynmorBrynmor Posts: 835 admin

    Hi @EmmaHarry welcome to the Online Community.

    Having neck pain due to arthritis can be very difficult and I understand you have to use amitriptyline to help, which as you note also helps you get to sleep. There are also other side effects that you may be aware of.

    What sort of arthritis do you have? We have a lot of advice available on our web site regarding neck/spinal pain that you may find useful:

    Do join in across the Community, post questions and give support. Its also a great place to drop in for a chat or to let others know how you are getting on.

    All best wishes


  • EllenEllen Posts: 360 mod

    Hi @ArtiOSTEfy

    Welcome to the Versus Arthritis online Community.

    Please do tell us a little bit about yourself if you feel comfortable doing so everyone will be very keen to support and help you in any way they can.

    Best wishes


  • KayBKayB Posts: 1

    Hi everyone

    I'm Kay and have osteoarthritis in my left hip and right knee. Been managing okay since diagnosis of hip about nine years ago but has really deteriorated in last year or so. Pre op was booked for hip replacement end of Marh this year...... then we all know what happened!

    Good to know this site and organisation exists for support.

  • Chris_RChris_R Posts: 204 mod
    edited 27. Nov 2020, 16:23

    Hi @KayB

    Welcome to the online community. so glad you have found us

    You say that you have Osteoarthritis L hip and R knee,also was booked for a pre op for hip replacememt but was cancelled because of Covid.

    It Is a shame that this has happened,but it is good you can chat on our forums and tell your story to others. it does help sometime to chat to others with similar circumstances

    Just a bit of information that you might find useful.Please keep in touch and let us know how you get on


  • LambcLambc Posts: 1

    Hello, just discovered you have a forum, signed up to 'meet' people who know how it is ! Diagnosed nearly 2 yrs ago after knee pain, turns out I need a new knee and a hip replacement on the other side, permanent crutches , struggling a bit as at 51 Im hearing a lot of you are too young , and everyones got arthritis .. I have a newly diagnosed genetic deletion which no one knows if its relevant in the osteo and deterioration of the cartilege... Im a single parent to an autistic young man who also struggles with his joints and has a seperate diagnosis which isnt classed as arthritis .. Hoping to find out a lot more and hopefully manage pain etc

  • Shell_HShell_H Posts: 181 mod

    Hi @Lambc - welcome to the online community!

    We do all understand, the community here is lovely and really helpful. I too have Osteoarthritis in my knees - although I don't think I'm as far along as you yet - I am also 37, so I have time to get there!

    I too have an autistic son as well - although he's only 10 and has no signs of joint pain. I hope your son is doing ok and is getting help. It's never easy to have multiple things to think about at once.

    Here's some info on both possible replacement surgeries, so you can see what's up. It's a huge struggle to deal with being in pain and mobility issues while trying to live your life and look after someone else, so do remember to look after yourself.

    Do have a look around the rest of the community and join in other conversations which interest you. Everyone is friendly and welcoming 😊

    It's lovely to meet you,


  • Hi newly joined have ra for about 6 months just like to thank everyone for the great advice

  • Shell_HShell_H Posts: 181 mod

    Hi @Chris66 - Welcome to the online community!

    I'm glad you've found the advice given on here helpful, and I hope you're getting support for yo0ur Rheumatoid Arthritis.

    In case you haven't seen it yet, there's a discussion here from someone who is also only a few months into being diagnosed with RA - you might find some useful advice or someone to talk to.

    Do get involved around the community - everyone is very friendly and it's really nice to be able to talk to people who know what you're experiencing.

    Lovely to meet you!


  • Hi everyone

    Hope you are all doing well. I've diagnosed with Arthritis for some 30 plus years.

    I'm a volunteer with a local mental health charity called St Helens Mind I'm one of their social group facilitators and hope to become a volunteer with Versus Arthritis also.

    Regards to you all

  • BrynmorBrynmor Posts: 835 admin

    Hi @Caliburn60 welcome to the Online Community.

    Great to have you here - we have a fantastic group of volunteer moderators here and I know there are lots of others in different roles across Versus Arthritis.

    Do join in across the Community, give advice, ask questions and call in for a chat to find out what everyone is doing.

    All best wishes


  • Newly diagnosed with PSA 

    first symptoms in lockdown very stiff fingers !

    Drs prescribed pain pills naproxen then co codomol ect and I felt like I needed to know what was happening so asked Dr for referral 

    Spoke to Rheumatology consultant and told him symptoms and I do have a few skin problems and nail changes had xrays and Mri 

    xrays show osteoarthritis in thumb and wrists 

    Mri showed inflammation in joints and tendons below the knuckles. 

    so in the next few weeks he wants to inject steroids into my joints I’m a bit scared 😟 

    I’m 44 and I just needed some support I’ve had to give up my hairdressing work due to hands being so painful 😣

  • Hi

    I was diagnosed with ra around 7months ago.

    Treatment going well so far.

    Here really to learn more about the condition and how it affects others

  • Shell_HShell_H Posts: 181 mod

    Hi @Pmjj26 - welcome to the online community!

    I'm glad your treatment for Rheumatoid Arthritis is going well so far. Very sensible to learn more when you can 😊

    There's some all-around information on RA here on Versus Arthritis, and we also have some stories which may help:

    We also have quite a few people in the community with RA - have a look at these discussions and join in to learn more:

    I look forward to seeing you around the community - it's lovely to meet you!


  • HoppyHoppy Posts: 1

    Hi there. My name is Jo and for the first time, I have been told I have arthritis of the knee and hand (my fault, I put it through a mangle as a child!). I'm waiting for an appointment with the muscular skeletal service but been told it could be several months. I have spinal stenosis and had breast cancer in 2018 and am a Type 1 diabetic. Trying to get on with life as best I can.

  • Shell_HShell_H Posts: 181 mod

    Hi @Hoppy - welcome to the online community!

    Wow, you've got a few diagnosis there. I am in awe of your attitude to get on as best you can, I think I could learn from you.

    I can help with your new diagnosis however - have a look at this information on arthritis in your knees and hands - I'd personally suggest trying to do the strengthening exercises suggested if it doesn't cause pain, as this can really make a difference in how well your condition is managed and in keeping mobility.

    (That last one isn't specific to arthritis in your hands, but it is still very helpful)

    Appointments for us all have been very slow this year (unsurprising really) so I'd definitely have an explore of what you can do yourself until you get your appointment with the musculoskeletal service.

    Do have a look around the online community and join in with any discussions which interest you. We're a very friendly bunch here 😉

    Lovely to meet you!


  • CleoMCleoM Posts: 1

    Hello ladies, gents and all human beings in which ever way you identify. Whatever that is it seems we all have something in common. Our superpower to live fully with Arthritis. Looking forward to sharing, learning and growing together in this safe space, Cleo x

  • TomTom Posts: 45 mod

    I welcome you @CleoM with a twitch of my cape! If you care to share a bit more information - what type of arthritis, how long etc., it is a racing certainty that you will pick up useful tips from members and the site.


  • Hi, I have just joined the group after reading through my booklet from hospital yesterday. I have been diagnosed with OA in neck and knees and PSA in hands(right thumb especially) and also in my ankles/feet. I have just started a 3week course of steroids, before starting Sulfasalazine in the new year.

    merry Christmas everyone 🎄

  • BrynmorBrynmor Posts: 835 admin

    Hi @NannyTrish welcome to the Online Community.

    With a recent diagnosis for osteoarthritis you may need some additional information to tide you over the holiday period! We have a great web site and it has an informative section on osteoarthritis that you may find useful, including information on managing pain, living with osteoarthritis and gentle exercises you might try:

    Do join in across the Community, you will be most welcome and its a great place to call in for a chat or to say how you are getting on.

    All best wishes


  • EllenEllen Posts: 360 mod

    ….and PSA would some information on Psoriatic Arthritis help @NannyTrish ?

    There are a few regular visitors who have Psoriatic Arthritis.

    Here's a recent thread:

    Best wishes


  • Hi im new here.

    I got a diagnosis of osteoarthritis in both knees just before Christmas. I think I have it in other joints as well but they only xrayed my knees as that's where most of my pain is. I found this community and thought it might help if I can talk to people with the same or similar conditions


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