Just call me Rip!

dreamdaisy

Up the meth and wear a hat. Would breathing pure oxygen every now and again help the O2 levels? Botox has been used medically for years - the frozen-faced ones have a great deal to answer for. I havge to go cook - will be back with more rubbish ideas later. DD (unplugged)

skezier

H Marion,

Didn't see you there! Are they prescription drinks? I had some of those when the crohn's was really bad as was put on a liquid diet last flare. They were chalky and didn't taste nice but those were the ensures I think they were called and it was 3-4 years ago.

Tis lot also ai the chair is theirs at night so are not too impressed to find me in it still I am going to get my head down earlier tonight as I do feel tired and with a bit of luck it will make it easier to be up at my normal time and not 11 :shock: :shock: :shock: I can't believe I did that you know... never have before ever!

Hope work wsa ok today? ((( ))) and slurps to the girls xx

Hi Barbara,

They have moved it to save money to Plymouth so distances are involved... also I don't have enough animals or acreage so don't qualify. They dd put a card up for me on their notice bored but nothing has come of it at all.

Hey this morning about 10ish the dam fox turned up... sleek coated and clearly not old I don't know what it was up to doing a daylight recki... he didn't get a chicken or a duck but he did get a raving banshee

Hope your ok today and sending you a ((( ))) xx

Hi DD,

Good luck with your dinner and would you like some eggs to go with it I agree upping the mtx is right, hair loss well it might stabilize eh?!

Its my blood vessels that are too small to support my body that causes the lack of O2 in the tissues and organs. It wouldn't really help to breath more in as the vessels still couldn't carry more. That's what the drip does, widens them all up big time but they are so small they spring back quite quick and that's why it wares off in 3 months...... I wish it didn't ((( )))) Cris xx

dreamdaisy

Get thee to bed my darling girl. Your tired little body is crying out for rest, so do it. We'll be here tomorrow, I promise. Your worried chum, DD

dorcas

Hey Cris me ol' flower

I is soooo verrrrry glad you had such a good doc appointment and it was a bonus she was being nice. sounds too that she is interested in the follow up so that will make the next visit easier?

All the symptoms make sense now don't they :?: doesn't make it less painful or tiring..but at least you (and all of us) aren't worrying ourselves senseless about you and what is going on with the PA and everything else. :!:

Don't worry about the hair...you're right..compared to it controlling the arther and crohn's it's a no brainer. And although the doc said there's nothing can help with hair loss...well some of us have been helped with taking increased Folic Acid...so you might be the same.
Keeping your hair short and nourished makes good sense too. I have mine quite short and although I don't have a comb over yet I do brush it over the thinning bit at the top. All glamour this innit.
Get theeself to bed early Cris and no falling asleep in odd places.

The loons send their sloppiest slurps and Smudge just a fixed feral stare. :shock:

Love n 'Well Done Cris for Today' ((Hugs))

Iris x

jaspercat

Hi Cris, I have just caught up with your thread, I wasn't around on sunday at all, I have days when I have trouble sleeping, and other times when I all I do is want to sleep, I am in this phrase at the moment, sleeping all the time, hope you soon feel better love Jaspercatxx

tillytop

Hey Cris, there is nothing more I can add to what has already been said except to say that I am thinking of you loads and sending the hunky garden guys over to yours with as much energy as they can carry, plus a pile of old metal dustbin lids which they will crash about to wake you up. Just let them know what time... Loads of (((((((())))))))) Cris. Lots Love Tilly x

speedalong

Hi Cris, wow had some catching up to do with your life ..

The docs appointment sounded helpful, clearly your letter after last time worked.

Not enough oxygen in your blood - no wonder you are shattered - think of mountain climbers struggling as the air get thinner and there is less available oxygen. Is there nothing they can do to improve this? Is this what the drip helps with? People who have sleep apnea sometimes wear a mask to give them more oxygen at night - would something like this give you a more refreshing night's sleep? You could ask at the pain clinic -might be a daft idea, might not.

I have no idea re ideas for peeling veg - but they do say that frozen and tinned veg (Iris has a fab tin opener) still count towards your 5 a day ... Do you eat fruit? You could cook veg in a microwave - plastic containers, very little water needed - so lighter or how about getting a billy can from a camping shop - it would have a bucket style handle - they come in all sizes (ie boy scout's pan for one!) so might be easier to lift - if you bought a cheap one it would probably be lighter too.

Dont even sit in the armchair tonight - tumble into bed even if you don't undress.

Take care,

Speedy

psyart

Hi Cris - can you get referred to adult social care?? The OT referred me and I had a visit from a lovely, young!! Gentleman who assessed me and my home and needs and then came back about 3 weeks later with equipment that I can use :!:

Eg - a chair that slops, special cutlery, something to help me undo bottles and jars etc! And it is all free :!: :!: Worth a try?

Sun was here for a while today - but then we had big rain drops

Am glad that the doc listened to you - are you going to listen to your body and not be too hard on yourself :?: But arent we all like that sometimes :oops:

please take care of yourself. (((((((hugs))))))))

Louise xx

Wonkylegs

HI Cris,

wow! I've just been trying to catch up having not been on the computer myself for a couple of days.

Sorry to see you are feeling so tired ..... I know how much of a struggle it is to do anything when you feel like that, and knowing that you have to must make it even more of a struggle.

I wish I had some good advice for you but I can't think of anything to add to what has already been said.

so instead I am sending littlelegs with her best 'wake up' tonic (I dare you to sleep through her jumping all over you insisting it is time to get up ) and loads of love and hugs from us both.

hope the pain clinic gives you some answers and some welcome relief.

hugs
WOnky

dreamdaisy

Morning skezier, an unplugged DD here, hoping that a) you slept in bed, b) you slept well and that c) you are feeling a little brighter today. It's a long old road you have to climb at the mo hun, but we are literally behind you, shoving with all our might! You are a little thing anyway, we'll soon get you to the top! DD

dorcas

Mornin flower

hope you're feeling a bit less tired this morn but that doesn't mean you go rushing about :roll:

take it as easy as you can...and as damsel said..remember we are behind you all the way. x

Iris x

dachshund

Hi Cris.
i hope you are feeling a bit better and i hope you are not working to hard.
do a bit sit a bit.
when you are tired everything seems harded to do and you feel more tired.
((((((((Cris))))))))
take care. joan xx

dreamdaisy

Wise words as ever from your good self, dachshund! skezier, take note of Joan's good advice please!

As we haven't heard from skezier yet, I'm guessing her tinterweb doodah isn't working again. I could be wrong, I often am. DD

dachshund

Thank you DD.
I just go by how it make's me feel and thats a worn out feeling.
take care. joan xx

barbara12

Hi Cris
Just sending a load more energy and hugs (((((())))) I do hope you got you feel a bit less tired today, please try and take it easier (sorry I'm lecturing you again ) you take care
Love
Barbara xxx

skezier

Hi Iris,

Sorry I am late getting back to you, the joys of babysitting....

Smudge has quite a severe stare there and you know mine have the sane look :shock: What is it about ferals?"!

Forgot to tell you we also talked about xrays and erosion..... She was saying cus the amount of xrays and scans I have had she wouldn't be happy to send me for one until all this inflammation is gone... they maybe a bit blurred cus of all the fluid. I should like to know about possible erosion (she said there might be) but will wait for the mtx (or something) to work and get the fluid down! One thing both her and the rumo agree there is no doubt I have pa So obvious eh?!

Hugs and a cuppa and end me the loons please? xxx

Hi Kim,

I hope your soon feeling much better this endless sleep stuff just isn't nice is it? ((( ))) xx

Hi Tilly,

Oh now they I should wake up for Bin lids... I would hope I could hear Least i got out of the chair last night... did dose first though and will maybe take the cushion out so its very uncomfortable, mind it is anyway :roll: Hope your doing ok and sending a ((( ))) and a cuppa. Cris xx

Hi Speedy,

That's what the drip does, it widens everything so for a few weeks I have the corrected sized circulation system. That's why I feel much better a few days after its finished, wished for a bit as I have to make up the blood first.

Hey someone said I can have their old slow cooker now that could help eh?! Bit of white stew and I might give up eggs for a week I can't eat fruit, occasionally get away with an apple but not too often. Crohn's and food are not best mates :roll:

Never thought to microwave veg..... thanks for that one, I don't know why I didn't think of it :oops: Will have a look at some peelers and hope this new increase of tablets will give me back some of the strength etc in my hands at lease.

Hope your dong ok? ((( ))) xx

Hi Louise,

Will ask about o/t tomorrow. Hey what is tis wet stuff doing here again!?! Where did summer go? The increased mtx will help... or not.... Have you ever been told you won't get funding for anything else flower? The rumo told me I had better hope it does work as there is nothing I will get funding for if it doesn't.... xx

Hi Wonky,

Please send her down for tomorrow and Thursday Mind he said he jumped all over me and it still took a while to wake me today.... Not like Sunday though Hope your feeling better now and sending a ((((( )))))) and slurps xx

Hi DD,

Oh never unplug the music Bit less tired today so that's a big step forward and didn't spend all night in the chair though sleep doesn't seem to be refreshing eh? Winding up the volume as ever... xx

Sorry Joan and Barbara didn't see you :oops: You are right Joan it all gets harder and the buckets get heavier and heavier all the time... now had the lodgers not taken the wheel from the sack truck..... Mind I got something that will mend that so will you give us a hand please to do it? xx

Barbara thanks ever so for the peeler stuff, will go have a look in a min xx

Rainbow77

Hi Chris

I have just been catching up with your thread. Sorry to hear that you are feeling so unwell at the moment.

Hope things get better for you soon. I can't really add anything else. So thinking of you and lots of cyber hugs (((((((((((((((()))))))))))))))))

fayann xxx

skezier

Thanks Fayann and its really good to see you and hope your doing ok still? xx

dreamdaisy

Sleep never refreshes one who has PA. Believe me, I know! Track 7 is the winner by a country mile, wailing bint and all!

Go slowly over the next few days hun, please. Take dachshund's advice, a little and often, with a good rest in between. You are sounding more up-beat now, and that is a wondrous thing. Thinking of you: I have to go to work now. Poo. Don't want to. I'm not in the mood. DD

dorcas

Hi flower
glad you're up and about...what you doin lookin after kids :?: does no-one think before they ask you to do babysittin. :shock:

Hey...I got me fingers, toes and eyes all crossed that the Mtx an the new botox with medrone help you.
Joan Rivers watch out (bad example) ..what about Katie Price then :?: :?: ....think I'll quit while I'm ahead and before you kick me in the shins with them boots!

Loons are on their way...Ruby has a half chewed shoe as a present for Haz whom she's blamed now for teachin her bad habits.


take it easy lovely.....another cuppa tea with honey?

Iris x

skezier

Hi DD,

I remember hey if you like that one... try a bit of Goldfrapp.... 12" Rode a White Swan....

Hope your work will be ok and soon over? I have to get some done cus I am planing to get done by dusk, sheeps and all..... xx

Oh Iris.... difficult choice there but..... I might just prefer to be Joan Rivers

They don' think there is anything wrong with me..... I get rolling eyes and inferences that I am just getting lazy to be honest but the kids did d up y shoe laces and thankfully have gone now he donned his very best Mary Poppins outfit and helped me while Hops did her very best leave me alone face and Gimps well he never helps much really..... (((( )))) and a cuppa xx

dachshund

Hi Cris yes of course i will come.
i know it is easier when you carry anything to have it in both hands because you can balance it better.
i just remembered you go to the hospital to morrow so i will have to be quick so if you hear some banging you will know its me.
take care. joan xx

dreamdaisy

Carrying stuff is a bind, isn't it? Our sitting room is upstairs, so if I have to ferry two cuppas it's put one on the stair 3-4 up, hold the other, climb the first stair, second stair, put the cup I'm holding 3-4 stairs up, climb the next, pick up the one originally on the stair and move it 3-4 steps up, etc etc etc. No wonder the days fly past! DD

tillytop

Hi Cris, just "checkin in" to say hello, and top up the energy supplies for you. Thanks for the ((())) and the cuppa - much appreciated!
You can keep the guys for as long as you need them and there are still more dustbin lids available if more noise needed!
Love and hugs, Tilly x

chris7

Hi Cris

Just catching up and joining Tilly and the others to leave a few buckets of energy and healing hugs your way. ((((( )))))
Sorry the busy bit doesn't seem to let up for you. :roll: Hope it goes well for you tomorrow, no chickening out please we will be in pockets for you. What time do we bang the dustbin lids in morning or can you have a bit of a lay in? I do hope so.
love to Velc's and the gang.
love and bestest fudge if you can tolerate it just now.
Chris xx