Just call me Rip!

dreamdaisy

Still stuck on track 7, bint and all! Love it - have worked out an entire dance routine to it too!

Yup, eyelashes are there to keep debris out of the eyes. How they do it I don't know, it's not as tho they sweep across the eyeball :shock: but that is their purpose. So, given the fact that you spend much time with wildlife in its various shapes and forms, and you lug about bales of hay (or, as I nearly typed hales of bay!) you need to wear something to guard your peepers. PLease consider it - and do it. I hope you have a reasonable day today: frog has set off for la belle France! Bon voyage, mon amie, bonnes vacances! I'm gonna miss her, loads. Did she tell you we had a good old natter on the 'phone this week? Over an hour! Strewth! DD

marion1952

Hi Cris

How did the sale go today??

Has your Gastro consultant mentioned Infliximab to you? I have heard that it works really well for some Crohn's patients..

Those nutrional drinks I had a few years ago were Fortisip, which I think must be similar to Entare. My friend's 22 year old son, who has really awful Crohn's, has Fortisip..

(Fur is flying in my kitchen as I type this - both dogs trying to play with a new squeaky red and white football!!)

Marion x

roses1

Hi Cris,

How are things today, good i hope and the car is fixed? Pains in the bum at times arn't they?

Rose x

speedalong

Hi Cris,

whole car thing sounds a nightmare ... I went remember going through the whole will it start/won't it thing. Ended up carrying my own jump leads ... but then of course like you say, you need an engine bigger than yours to be able to jump start it. I think the sheeps battery on charge is a good plan for peace of mind, just in case. Though if the battery is no good - you'll just have to blow the pennies and get a new one ... especially before the winter.

DD is right about protecting your eyes ...

Hope the rheumy does come up with a better combination of meds.

DURR - silly question about the fruit ... sorry!!

Speedy

dreamdaisy

Morning skezier, I hope that you are not three foot underwater and that nothing has been blown over/down. Summer. Over-rated season if you ask me. I hope you slept - IN YOUR BED - and that things are reasonable today. DD

skezier

Hi DD,

Oh summer ..... think its officially ended here now! Still least the wind has dropped :roll: Going to keep the chicken in I think so that means can get finished earlier as the fox thing doesn't become an issue..... and in this weather he will be even more likely to be looking for an easy meal.....

Hope you got a decent night? I got home from the sheepsis and just turned in cus knew the armchair would be for the night so I am getting better at avoiding it Not sure about staying awake though xx

Hi Marion,

The Gastro did say if the mtx fails (he was looking at my wrists at the time) then he and the rumo should put their heads together but the rumo did say I needed to hope the mtx did work as I wouldn't get funding for the anti's. Maybe through the crohn's I could?

Start the higher dose this week and glad really as its lost its grip on the crohn's just now as well. The liquid diet thing, bless him, that's when its really bad and I hope he soon feels so much better. Its an evil thing I honestly do think it the worse thing I get. The only thing I could remotely eat the last big flare was rice crispies and even they had me up most the night! I won't have surgery either........ Funny cus I am happy to on anything else but not that.

Oh who is winning with the ball?! Gimpy and Slipper boy have 'fights' over balls, Gimps never breaks them and HE never leaves them whole!

Hope work is going ok and our holding ok on the increased hours? Cris xx

Hi Rose,

It started yesterday and I am so hoping it will in a min as well...... Its a nice car but I hope it doesn't think this is how to get on my good side I am really cheesed about missing the pain clinic, the neck needed to be jabbed! Hey I also could have done with the botox! xx

Hi Speedy,

Its not a silly question about fruit, its just crohn's tends to be more food susceptible than colitis is. I always think if you have to have IBD crohn's is the better of the 2........

Its a 2liter and my mates 1400 didn't have much success to jumping it! The electric fence battery powers the fence for 10-12 days and its a heavy duty fence so that's now being run by smaller car batteries and for bow the big one is on stand-by! Its probably just a one off... cars sometimes need a boost up charge wise as it gets colder eh? We seem to have jumped to winter now so fingers crossed eh?! hey you would think it could have waited to let me down till I had finished paying for it eh?! :roll:

Hope your ok and S has had a decent time during the hols? xx

skezier

Hi Cham,

Bless her I hope she likes her semi retirement. Its not easy to know when to do that but well done for making the decision on and letting her have a bit of a rest, she sounds like she is quite some horse.

Hey Little Bracken and his mum are meant to be back the end of the week... wonder how much he has changed? Still think it’s brilliant name and the owner likes it as well... he likes Rowan as well but thinks Primmy should be called The Witch.... he has point

I am trying to balance stuff just now cus i sort of feel one step above death just now b the increased mtx might just be what I need... except for the hair loss The gp promise’s me its more obvious to me!

Hope your feeling a ton better and sending a ((( ))) Cris xx

dreamdaisy

One step above death isn't good. I want you 500 steps above it, minimum. How do we achieve that my lovely one? You are a conundrum skezier, so many illnesses, no efficient drugs. Please ensure you sleep in your bed - that is one step more above death every day if you do that much at least. A fretting DD

TRACK 7! FABULOUS! AND 11! TERRIFIC! I LOVE THIS ALBUM -

THANK YOU SO MUCH!

marion1952

Oh Cris - I wish I had a magic wand - I would be down that motorway like a flash to wave it over you..

I bumped into a Gastroenterologist I know today and he said he has had good results with his Crohn's patients on Infliximab ... he says to them 'How's your Crohn's' and they say 'What Crohn's??'

I hope the increased methotrexate controls things for you Cris (you can have some of my hair - it's so thick it's like a blooming brush at the moment - despite being on methotrex - I can't understand it!)
BUT
if it doesn't control it, then I really do hope your Gastro and Rheumy and GP get together and come up with something else (?infliximab if necessary).

My friend's son is on Aziathopine now. A colleague at work has really bad colitis and has been on 30 mg of pred for months ! Whenever they cut it down to 25 mg she ends up in hospital .... I really do have great sympathy for you Crohn's/colitis sufferers...

Marion x

tillytop

Hi Cris - just popping in to say "hello" and top up the energy buckets again. Glad the guys woke you up successfully only after 5 missed calls (!). You're welcome to keep them as long as you need and the big limo is on standby ready to pick you up anytime!
Thanks for the ((()) and the cuppa as always!
Love Tilly x

speedalong

Just lost *!*!*! message half way through - don't know how I manage that - only ever do it on longish replies!!

S was tested for Crohns and diverticulitis when he was having severe pain and problems with his digestive system. Luckily he was clear and he had out of control IBS, acid reflux and chronic constipation. Thankfully eventually we got these undercontrol. Now desperately trying to remember why I was telling you that ...

Oh yes, because my friend used to do reflexology on him and couldn't get near the points related to digestion. However, her Dad who had Crohns found reflexology did offer him relief during bad times ... and I wondered if you had tried it?

We have had a lovely day out today. We set off in the car in torrential rain and thunder and lightening!! (We planned it the night before when the weather forecast looked more promising.) Luckily the weather gradually improved and we both had a great time!

Speedy

ironic

Hi Cris,
Have you heard when you can get a new appointment?
Jessicar is being a good girl so far. Even managed not to get a new Roe deer grill They seem to be jumping out at me at regular intervals :shock:
I got rid of my last one because it kept cutting out on me. Nice cos the steering locked. EKK!
You have a busy appt time coming up then. Oh Cris I do hope you can get some help soon. Have had anymore thoughts on the slow cooker?
Sydney is still welcome here if he gives you any more trouble.
Glad more of the employers are due back this weekend.
Hope the hay shortage is not effecting you.

Lv, Ix

skezier

Hi,

Having to do this over Velcro who is in her normal welded on position..... Oh and frequent head buts under my chin.... not Velcro for no reason.....

Hi DD,

Don't E fret flower I am ok really ..... Just tired and this pa flare has been going on fora very long time! I kinda used to it but the fibro thing is new. I shall get used to it... I have the oa (just though I do curse it so much! ) I have a bit of an off beat lifestyle that I honestly can't give up as it would shatter me and break my heart as well ...... It keeps me sain and (hopefully) stops me from being too selfish but it also means a bit of work ....... I will be ok once I got used to the fibro eh?! Hey you never now they might bring the pa under control as well

I am a survivor flower and well the love I got for the employers will keep me plodding along ..... and the support from this brilliant forum is invaluable....

Remember how it was..... guess what I got in my ears?! It was track 7 that got me into Deadmau5 cus it was a single..... shorter version and not that bit that makes you dance ((( ))) and some anti-fret draft Cris xx

Hi Marion,

Bless him he is too young for this! Its an evil illness and its so deliberating as well..... the tiredness crohn's brings is worse than anything I ever had.......The pain is incredible as well..... I had a very bad flare 4 years back and had 2 abscesses... Marion I past out it hurt so much but the doctors I had then only treated me with anti- diarrhea tablets and I waited 9 months to see a gastro...... The plus side for me was I ended up a size 10!

Preds stopped that flare in 2 weeks! Thing is they also went after my muscles and bones..... I was on em 3 months and was so glad to get off them, but they did the job!

Aziathopine was mentioned by the Gastro when I saw him last month but he was happy the mtx was holding it,...... Its sort of escaped a bit but the higher dose will clobber it for a bit..... My Brother has colitis and I have always believed crohn's is the better of the 2. I had it very bad as a kid but have been lucky in the scaring cus I will not have surgery..... (that's one of my biggest fears to be honest)

I see the rumo in October and well maybe 17.5 will get the wrists and elbows less inflamed? Personally I should like to have 25 and clobber it but they wont let me jump to that from 15..... will see what happens on the 17.5 and holding a huge bucket of hope.....

Hey a ((( ))) for you and a couple of smacko's for your girls..... xx

Hi Speedy,

Bless him, keep and eye on him though as crohn's isn't too easy to detect unless it does big damage.

Mine does the opposite to constipation.... 5-6 hours non stop....TMI!

A lot of this not eating properly is fear of kicking it off if I am honest.......Its so evil and I live alone so hitting the bathroom floor at some ungodly time of night cus you pass out isn;t good... though I normally pass out on the loo..... I have just had 3 months of the dam thing again and be honest it does effect you mentally as the consequences of triggering it are huge..... I sound scared of it eh?! :roll: You know what its so lonely when it flares bad..... I am scared of it just never say too much.

Thank God the new doctors are so much better! They helped and also recognised my body went int shock cus of it draining me so bad. Best thing I ever did was change doctors!

Sending you a ((( ))) and a bit of saffron cake and cream..... I can eat that Cris xx

Hi Tilly,

A hug and a thank you for just being there

Gt the lads and their dustbin lids ready for tomorrow and Sunday..... I might not go tomorrow though but will be up early and might just get them to help with the chicken shed Hey they might help dig out the sheeps shed as well! Another ((( ))) and a hope your feeling ok? xx

Hi I,

Oh Jessie car is well behaved for you! This one was as good as gold today but a mate thinks the battery will probably play up in the winter so again I need a good sale! :roll: Yet here I am saying I might not go tomorrow.....

Sydney is on his best behaviour just now but I need the drip t get this leg to heal...... Its funny as soon as I have had one days worth all my cuts, bites etc start to heal......

Tell you what though it is such a comfy car, got lumbar support and I crawl into it after a sale and boy does it help! Not having to use the clutch also helps and I don't get out of it so wreaked. Oh and its got such a good sound system... just a iffy battery Hope your doing ok and sending a ((( ))) and Velcro is trying to help type so obviously wants to say hello xx

Someone asked abut the slow cooker... thanks for that I shall ask for it cus it would really help eh?

Velcro also said she wants to send her thanks for you all helping to keep her employee going

dorcas

Cris, flower....no one person should have to cope with all you have had to deal with.

I feel so inadequate to help :? but hope that your docs will soon find the right balance of treatments and meds to treat the crohns, PA and the Fibromyalgia

You are one in a million.

gentlest healing (((hugs)))

Iris x

skezier

Hi Iris,

Hey your anything but inadequate! You should say about wally, had a smile on my face ever since you said! So much for the 10%!! You have been inspirational so don't forget that!

I am kinda lucky, I grew up with the crohn's and had the oa by 15-16 so am well used to them.... The pa has been with me a while as well..... the fibro, well the pregabalin is about to ride in to the rescue! Good stuff that you know

Sending a ((((( ))))) and a big and so much hopes in a bucket (though how she fits I will never know ) Cris who was moved to tears by your message but feeling a bit guilty cus she knows she is a bit off the ball just now :oops: xxx and a bit of saffron and cream

chris7

Hi Cris

So sorry been AWOL a few days. Just trying to catch up. So sorry to see the new car let you down, you do have some adventures there you could well do without. :roll:

Do hope you are at least finding your bed occasionally these days and really hope if you must do the sales tomorrow and Sunday that they are good ones for you.

Sending refills of hugs and energy your way. (((( ))) take care.
love
Chris xx

skezier

Hi Chris,

Don't apologize for being AWOL, I am all behind and all over the place! I should have hidden in Toni's bag .... she send her love to you by the way and they are nearly at their destination..... with sun and 29 degrees.... if she doesn't lasso the sun and tie it to the van on the way home I shall kill her

Nice to see you and will catch up as well soon... just need to hit the embers and get some of this concrete out my pocket!!

You take it easy and I got the best track on (12 ) love and hopes and ((((( ))))) Cris xxx

dorcas

Morning good buddy

hoping you made it to bed and the sweet land of nod (even if it was with the help of those heavy duty meds )

Found this bag of hopes and hugs and healing drafts (probably some of the ones you been sending me over the months ) which are now winging there way down to you by express cyber post.x



would be wonderful if you get some relief real soon.

Iris xxx

dreamdaisy

I know you have a wacky, off-the-wall kinda life, and it's the one that suits, and the one that fits you, and that's a good thing BUT we need to work out some way of getting YOU some care. That way the wackiness can continue at full tilt. And that is the troublesome bit - you are too far away! I sincerely hope you made it to bed last night and will do tonight. Every night you do that is another step away from you-know-what, so please do that at least. Right: brace yourself: ((((((())))))) DD

psyart

Hi Cris

how long you had PA? I was diagnosed with Fibro in June - secondary Fibro? :?: not sure what it means - was still trying to get head round PA let alone Fibro

and now have to have hearing aid fitted as have ringing in ears and trouble with hearing

but Cris - you have a lot more to cope with so all my love and support is going your way at the moment!!! please listen to what your mates on here are saying and take care and sleep in your bed :!: :!:

small steps could make masive changes :?:

Louise xxxx ((((((((((((((((((hugs)))))))))))))))))))))))

PS i am in PL26 code??!!

skezier

Hi Iris,

Thanks for the bag, just had some for breakie Hope asked when do you need her again? I have asked Elna to iron her dress and well she is practicing sitting quietly :roll: I shall have to take her into a cafe for a cream tea and get her used to these things

I couldn't get to sleep last night so died a bit re phone ringing 2 hrs later :oops: 15 missed calls but its still better than 75!

Leaving you more saffron and cream..... with poss sheep prints in it(they actually don't like cream... not many things that I can say that about ) Love Cris xxx

Hi DD,

Got a bit more energy today...this bed thing might be helping eh?!

Its raining for a change I seem to be wearing a concrete body warmer and the feeling of being pushed down on my shoulders isn't helping too much but that's probably the neck and as ever the pregabalin is riding in

Hope you got a decent night and am speechless over all those hugs ((( ))) back to you xx

Hi Louise,

You are in the next door post code to me The back field comes under St A but the front gate is further up and over and its just 30. I know post codes are big areas and hope your in the lower near the sea 26? I'm quiet near Eden..... :roll: :roll: Mixed views on that one

I am sorry about your ears and really hope that the aids help. A ((( ))) for that one as well as a bucket of hopes.

How long have I had pa.... they have been telling me for about 15 years my hands look like RA but the bloods said no. The oa masks some of it but the mri showed spondylosis and litis in my neck 3 or so years ago.

Doctor H I see for the circulation really but I broke down and asked him if he would take over the pain relief of the oa in my back ( the useless doctors wouldn't even send me for an xray!) and he arranged the scan and put me on much better pain control. You know he is such a kind guy! He also arranged for me to see a gastro 4 years ago cus again the useless doctors wouldn#t! You know when he says is there anything else I can help with? Well in my case he must have dreaded giving me the option! Been seeing him since 2000 so its easier to talk to him now.

I asked him about a year or so ago if he could help with my wrists and elbow and that's when he said pa, I already knew that though from reading this site. Started on sulfa, 9 months later had a major reaction to it and went on to mtx... still waiting for that to work

The fibro, well when I saw him back in may he started to say he thought there was something else going on re my muscles and I said to him if he was about to tell me I had fibro please could he leave it in the air....... Louise I don't really want another condition Like not naming it helps Anyway soon as I sad that he smiled and said lets talk abut your feet then.... kinda of the answer eh?

I am already on the drugs that help. Its inflammation of the connective tissue where the muscles attached to the bones... I think.... Its kinda arthritis of the muscles and connective tissues and flower Pregabalin really helps as does trimodal.

You can fight back a bit... I am losing so much muscle but when they are less achy I do make them try and build up again Its all just so tiring but hang in there and I see Doc H in October as well but I go over B community not T.

Sending another ((( ))) and who ordered this rain?! Mind t least the fog has lifted Cris xx

hey you coming to my rave?

dreamdaisy

I don't know how you do it. I don't know how you cope. Please stick to the bed thing - humans invented beds for a good reason, they are nice places to be. It's very humid here and about to rain again. I am a crosspatch. I blame the weather! Thinking of you, my lovely girl. DD

skezier

Oh DD sorry your a crosspatch this morning and yep the weather is shift eh?! Mind its a little bit brighter here just now and stopped raining but not sure if tomorrows sale will be on... kinda hope it is as the indoor one is claustrophobic and it also means a lot less stock and a lot more carrying..... Hey I head in the sand quite a bit... it helps xx

marion1952

Hi there Cris

Hope you are having a reasonable day..

Your description of your Crohn's flare up (and 2 abscesses) 4 years ago had me shuddering!! Thank goodness you are in good specialist hands now. That previous GP of yours was a disgrace to the profession.

When my mum first developed diverticulitis I remember phoning her one Saturday many years ago and hearing this awful groaning in the background - and my dad said that was mum (in pain..) fortunately, with a strict diet, she managed not too badly for the next 30 years..

I really hope the 17.5 mgs helps both the PA and the Crohn's.. it's good stuff that methotrex.

You've got a physically hard life Cris, but a wonderful one too..with your lovely animals and the 'great outdoors.' I just wish you had a bit more help with the heavy jobs

Marion x

psyart

Hi Cris - I live in the 'Goat Coutry' as my father calls it!!! Or clay coutry! :!: :!:

And when is the rave :?: :P tell me more :?: :!:

I have a very good friend who has croans and has had bag fitted then a reversal done since Feb this year - i have seen the pain she was in - please take care. Thank god Mr H has helped you with all the bits :!:

Am very tired today - so will catch up maybe later or tommorw! Remember go to BED :!: :!:

Louise xx