An update on Frogmorton.

dachshund

Hello Toni and Lucy
well done Lucy have a good day.
((((((((Toni and Lucy))))))))
take care
joan xx

dreamdaisy

A brief update - Lucy is hoping to go into school again this afternoon for a maths lesson. Maths on a Friday afternoon: my idea of a hell on earth but luckily Lucy (who is far more mature and sensible than me) sees it differently.

Isn't she fabulous? I quite happily blame the mother. DD

dachshund

Hello Toni and Lucy
i hope Lucy enjoyed her day at school nice for her to meet up with her friends.
have a good weekend all of you.
((((((((Toni and Lucy))))))))
take care
joan xx

applerose

Hope Lucy enjoyed her afternoon at school and she has a good weekend. xx

frogmella

Wow! Going to school?? Amazing. What a girl! I hope everything is going to plan and that the appetite is healthy again. Sorry for my absence - work! But you have been in my thoughts. ((())) xxx

frogmorton

Hello Frogmella, Christine, Joan, Barbara, Sticywicket, Bubbadog toady and the migs (and anyone else who I forgot :oops: )

I hope you are all well

Thank you DD for keeping everyone in the loop

Lucy has had a great week, went into school twice once for English and once for maths. She had a fall on Monday, but we haven't told school as she's worried they will not want her there again :? Friday's lesson is ground floor.

She also had some platelets this week, but apart from that and bloods has been really well She's eating more each day and will soon be on a normal diet I think

Next week she has to go in on Tuesday for EEG to see Epilepsy nurse specialist then Clinic to see the consultant (discuss maintenance then too???) and then for a line flush and dressing change :roll:

It will be a long day, but if all goes according to (my ) plan maybe she will have more time at home

Tia's bf called round twice this week to pick up stuff for her as he is visiting today. She rang us last night and will be back Friday for a charity do we are going to by one of Lucy's friends for Cure Leukaemia.

Thanks to you all

Love and ((()))

Toni xxx

dachshund

Hello Toni and Lucy
Toni thank you for taking the time to tell us about Lucy.
i hope Tuesday goes well ((((((((Toni and Lucy))))))))
take care
joan xx

applerose

Oh dear. I hope Lucy is ok after her fall and she didn't hurt herself. I'm glad it looks as if she will be eating normally soon. Hope all goes well on Tuesday and you all have a good day on Friday with Tia. xx

hileena111

I'm sorry I haven't been on this thread for ages
Doesn't mean I'm not thinking of you and Lucy.....tech problems plus some appointments of my own
The forum has been very "iffy" so lets hope it lets me post this
I hope Lucy is OK after her fall??
Its great that she is going to school....Maths :shock: what a brave girl.....but we know that anyway
Hope she is soon eating properly

Love
Hileena

frogmorton

Thank you Hileena, Christine and Joan

Thank you for taking the time to read this

Lucy did well again yesterday. Ate well and had a choccy milkshake and oddly enough a star*ucks chiiled latte from Te*co.

She also did some bike riding on one of those 'on the floor' ones that you can use for your arms too.

....and she sat on the exercise ball for half an hour watching Britain's got talent (or the X factor????) good for her weak core strength which she needs to build up to prevent falls at school.

No visible damage, but she had the wheatie on her back that night - l think she had pulled a muscle

The sun is out so a lovely day ahead I hope

love

Toni xxx

stickywicket

That daughter of yours is such a star! She's so determined to do the best she can to help herself. Those big 'sit-on' balls are supposed to be very good for core muscles. I use an i-joy ride machine for the same purpose.

I think you're probably right and she's overdone it a bit but she certainly has the right attitude. Come on, Lucy

hileena111

Hi Toni
That's great news.
Those balls are very good for your core muscles.
I've got one of those bike things only mine get used for my arms more than anything.......bat wings
A Starbucks Latte"!!! mmmm!!!
I've just come back from Starbucks and I had a "freebie" so instead of my usual cappuccino I decided to try the Pumkin Latte with loads of cream on the top. She said you might as well have a large one since its a freebie..... :oops: Of course I said no {like heck I did} It was fantastic
Send my love to Lucy
Love
Hileena

barbara12

Toni Lucy is doing fantastic..apart from the fall, it must have shook her up..but hopefully she will soon recover from it..how brave she is ..and I bet she has no idea.. hope Tuesday goes to plan ...will be thinking of you both..((())) xx

toady

Thank you for updating with all the news.. there are some busy days there, hope all goes well Tuesday and you can cut things relatively short as hoped..

sorry about the little fall & hope the pulled muscle eases quickly.. brilliant progress with the eating as for the trips into school what can I say.

Best as always xx and will call in & see how things are going after Tueday's 'discussions', glad Tia can visit on Friday and hope the 'do' is a big success.

dachshund

Hello Toni and Lucy
i hope Tuesday goes well and does not cause too much pain.
((((((((Toni and Lucy))))))))
joan xx

dreamdaisy

They survived Tuesday - a very busy day - and now Frog has all the meds they need at home to begin the maintenance phase on Monday. Maintenance sounds somewhat easy but it isn't - still many meds at various times with hospital visits monthly and three-monthly, but after the past few months that will seem like a luxury, yes?

Good luck you two, we're still with you and will be all the way, OK? DD

mig

Hugs to all. Mig

tkachev

I'm so pleased to read she is going back to school here and there, even maths can be a delight when you have been away from your friends for so long.

She'll soon build up her core strength I'm sure.

Hope the charity event goes well and you both have fun and raise lots of many for such a good cause.

Elizabeth xxxx

dachshund

Hello Toni and Lucy
i wish you all the best for the maintenance you are two fighters.
take care ((((((((Toni and Lucy))))))))
joan xx

applerose

Good to hear that Lucy is about to start maintenance. Hope it all goes well. xx

dachshund

Hello Toni and Lucy
i hope everything is going as well as it can.
((((((((Toni and Lucy))))))))
take care
joan xx

toady

Just popping in to wish you all the best for tomorrow, and of course Monday. xx

barbara12

Good luck with the maintenance Toni and Lucy ..a little glimmer at the end of the tunnel..many positive hugs that its all goes well...(((()))) xx

stickywicket

Hello you two. I hope it's going OK

frogmorton

Hello to you all

Stickywicket (that ijoy ride looks fabulous!!) Barbara Toady and Joan. Christine Elizabeth mig and Hileena

Thank you DD for the update for everyone.

Maintenance starts Monday with steroids (dexamethazone) for 5 days, vincristine (IV chemo) and mercaptopurine (chemo tablets at home every day). The MTX is on Wednesdays (no folic acid )). Intrathecals are only 3-monthly

To start with she will have weekly blood tests - LUXURY!!!!! (but essential in-case she gets neutropenic and can't safely go into school etc)

this phase consist of 3 monthly blocks of which she will have at least 7 so a long haul, but easier

YIPPEE!!!!!!!!!!!!!!!!

The 'do' was lovely it was great to get the chemo-crew back together minus of course the lovely Pagan, but her Mum and Dad were there which was important for us all.

I will fill you all in on the money raised when I hear.

Lucy won a bear as big as herself

Also £32 worth of vouchers for....a vineyard!!!! :? We'll have to see whether she can use it when she gets to 18

Tia won a £25 voucher for John Lewis.

I came home with a bad throat/cold not sure but using 'first defence' in-case and sending Paul to fetch face masks for me before I go into Lucy. I have no voice today.

and we meant the 'Cure Leukaemia' chap who wants to do a video of Lucy for the charity. So you'll all be able to see her soon

I hope you are all well and enjoying this rain :roll:

love

Toni xxx